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Follow this link for APPROVED CF CLINICS. www.cff.org Good luck

All CF patients produce and swallow mucus. The mucus mixes with food in the digestive process. Mucus is a sticky substance and will, with digested (stool) food, stick to the walls of the colon. This causes a expansion of the colon and will cause pain. If your son is being seen at an APPROVED...

Sorry Call your CF Doctor

Call your CD Doctor

NO CF son; I was not "late onset". I had symptoms (that I am aware of) at age 3. I had symptoms right up to my dx, including 2 surgeries that would be CF RELATED NOW. We are born with CYSTIC FIBROSIS and I bet that it you could do some research, you had symptoms as well.

Courtney & G-Star: I have Delta F508 and V562I. V562I is a mild and rare mutation, only found in seven families in Northern Ireland. January 19 is my birthday and I will be 78. I have 2 college degrees. I played varsity basketball (not well but I played). I was a lifeguard, for the State of...

Stella: I was diagnosed at age 47 so being dx at their ages and without symptoms is really a good thing.

It sounds to me that you need a FULL CYSYIC FIBROSIS SEQUENCING. This is a simple blood draw that will identify every known CF mutation. Have your Doctor refer you to an APPROVED CYSTIC FIBROSIC CLINIC and see a CYSTIC FIBROSIS SPECIALIST.

I have 3 siblings, none have CF. I do however have had 3 cousins who have passes from CF and one living who has had a transplant. It should be important to you to know if you have CF or are even a carrier. Have your Doctor send you to an APPROVED CF CLINIC and be tested there.

Livvy: Next week I will be 78. I have 2 college degrees and I have been married for 55 years. Yesterday I chatted with a guy 57 who was dx at age 41. His mother tested positive at that thim also, today she is 94. Contact CFF to discuss the scholarships available for CF Patients.

I was diagnosed at age 47, 30 years ago. You are exactly where I was then. There are now almost 2000 known mutations and we know that you have tested positive for one of these. Cystic Fibrosis is a progressive disease and you will get worse. Without treatment the progression will be much...

First, If your twins are not being seen at an APPROVED CYSTIC FIBROSIS CLINIC by a CYSTIC FIBROSIS SPECIALIST, you need to start there. Some, only a few, variants mimic CF. Tell me the name of the largest city near you and I will find the Approved CF Clinic.

If both you and your husband are carriers, there is only a 25% chance that a child that you produce will have CF. Yes this is normal. For a person to have CF, he/she would need to have 2 mutations, the twins seem to show only one. That being said, there are almost 2000 known mutations and I...

CF is NOT a death sentence. There is plenty of time for a proper diagnosis. I'm 77 with CF.

F508 is the same as Delta F 508. There are almost 2000 known mutations. Someone with CF has 2 mutations. 2000 X 2000 = 4,000,000 possible combinations of mutations. 3% may sound like a rare combination but more common than the 3% would sound like.

BSJ: CF is a very different disease. It requires 2 mutations, one from each parent. There are almost 2000 known mutations. This means that there are almost 4,000,000 "versions" of CF. As a result, Doctors treat the symptoms, not the disease. I would suggest that you do the same. Don't...

The sweat test that is given outside of a CF Center is only a "scanning sweat test". That is the reason that you were told that your CF Center will redo the test.

rb: I cannot control the people that I come into contact with each day but I can control my knowingly coming in contact with another CF Patient. You need to google, Burkholders Cepia (sp).

I am 77 and my experience in dealing with Medicare is if you need 14 days of IV's, you spend 14 days in the hospital. I would also suggest that you purchase the best Medicare Supplement plan that you can find.

Call your CF Doctor. It is very likely nothing but he/she should know about it.