Search results

  1. R

    Neb before bed?

    I got TERRIBLE shakiness and tachycardia with albuterol, so they switched me to Xopenex in both the neb and inhaler forms. While I still have a bit of shakiness with the Xopenex on the neb, it's no longer an issue with the albuterol. It's so much less noticeable, though, with the neb, definitely...
  2. R

    Abnormal 2nd Baby Screening Result

    I'm so happy. <img src="i/expressions/face-icon-small-happy.gif" border="0"> What a relief that must be for you. I'll keep you in my thoughts, though!
  3. R

    Abnormal 2nd Baby Screening Result

    I'm so happy. <img src="i/expressions/face-icon-small-happy.gif" border="0"> What a relief that must be for you. I'll keep you in my thoughts, though!
  4. R

    Enzymes and Malabsorption?

    Hi. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Actually, yes, there has been bloating, I thought it was just because I've gained weight, but my shirts have not been fitting, which as you can imagine, is more annoying than pants, because I'm so self-conscious of my stomach to...
  5. R

    Enzymes and Malabsorption?

    Hi. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Actually, yes, there has been bloating, I thought it was just because I've gained weight, but my shirts have not been fitting, which as you can imagine, is more annoying than pants, because I'm so self-conscious of my stomach to...
  6. R

    Enzymes and Malabsorption?

    It's just weird, I'm taking the same amount of pills as usual, I increase and decrease as needed, but my stomach still hurts almost every day. I've got the Zenpep down to how many to take for all the different foods I eat (generally 5-6 with meals, 2-3 with snacks), but my stools are just not...
  7. R

    Enzymes and Malabsorption?

    It's just weird, I'm taking the same amount of pills as usual, I increase and decrease as needed, but my stomach still hurts almost every day. I've got the Zenpep down to how many to take for all the different foods I eat (generally 5-6 with meals, 2-3 with snacks), but my stools are just not...
  8. R

    Enzymes and Malabsorption?

    I'm aware it sucks to not want to eat anything, I've also experienced that, but it also sucks to be hungry all the time even after eating, and then get shaky within minutes afterwards. It sucks to have my stomach hurt every day with CF. I'll get the blood sugars checked. Thanks for your input.
  9. R

    Enzymes and Malabsorption?

    I'm aware it sucks to not want to eat anything, I've also experienced that, but it also sucks to be hungry all the time even after eating, and then get shaky within minutes afterwards. It sucks to have my stomach hurt every day with CF. I'll get the blood sugars checked. Thanks for your input.
  10. R

    Enzymes and Malabsorption?

    I've been on Zenpep for a couple of years now, so I'm pretty sure it's not them. I have a clinic appointment next Tuesday, so I'll definitely ask about it. When I was in the hospital, they tested my blood sugars and they were slightly elevated, but they weren't worried about it at the time. I...
  11. R

    Enzymes and Malabsorption?

    I've been on Zenpep for a couple of years now, so I'm pretty sure it's not them. I have a clinic appointment next Tuesday, so I'll definitely ask about it. When I was in the hospital, they tested my blood sugars and they were slightly elevated, but they weren't worried about it at the time. I...
  12. R

    Enzymes and Malabsorption?

    Hi guys. I'm sorry if this is a stupid question. I'm 19, and have been on enzymes since I was diagnosed at age 2. I'm on Zenpep now, 5 with meals and 2-3 with snacks, and have been for a couple of years. They've always been good at keeping me feeling good. I take Miralax once a day, 17 grams. I...
  13. R

    Enzymes and Malabsorption?

    Hi guys. I'm sorry if this is a stupid question. I'm 19, and have been on enzymes since I was diagnosed at age 2. I'm on Zenpep now, 5 with meals and 2-3 with snacks, and have been for a couple of years. They've always been good at keeping me feeling good. I take Miralax once a day, 17 grams. I...
  14. R

    PLEASE READ - I really need help

    Hey, I'm also in Seattle, and I feel for you. I moved from Spokane (for college) in September, and developed a TERRIBLE exacerbation. I was supposed to be seen at the UW clinic. I had an appointment for the 24th of October, but I was so sick I needed to be seen THEN. I called the UW CF clinic...
  15. R

    PLEASE READ - I really need help

    Hey, I'm also in Seattle, and I feel for you. I moved from Spokane (for college) in September, and developed a TERRIBLE exacerbation. I was supposed to be seen at the UW clinic. I had an appointment for the 24th of October, but I was so sick I needed to be seen THEN. I called the UW CF clinic...
  16. R

    thoughts on school

    I went to public from 1st grade on. Enzymes were a pain. Until I was 2 weeks into my freshman year, I had to go to the nurse to get my enzymes. That made me very responsible very early on. Sure, if I forgot, the nurse would sometimes remember to get me out of class, but by that point it was too...
  17. R

    thoughts on school

    I went to public from 1st grade on. Enzymes were a pain. Until I was 2 weeks into my freshman year, I had to go to the nurse to get my enzymes. That made me very responsible very early on. Sure, if I forgot, the nurse would sometimes remember to get me out of class, but by that point it was too...
  18. R

    Doing cayston on the go

    Why not use antibacterial dishsoap, out of interest?
  19. R

    Doing cayston on the go

    Why not use antibacterial dishsoap, out of interest?
  20. R

    Muscle and Joint Pain/severe exhaustion

    I have been declared allergic to all fluroquinalones, because of the joint pain they cause. I will not take them, because they caused pain so bad that I couldn't walk within hours of taking the first dose, and it would last up to a few months after the abx were done. It includes Cipro, Avelox...
Top