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  1. R

    Looking for an old friend with CF please help

    This might be the person? He has a mutual friend with me, who I know has CF as well. https://www.facebook.com/profile.php?id=100000467704957&sk=info
  2. R

    Looking for an old friend with CF please help

    This might be the person? He has a mutual friend with me, who I know has CF as well. https://www.facebook.com/profile.php?id=100000467704957&sk=info
  3. R

    Children affected by CF

    I saw this a couple months ago on Tumblr. I hate the pictures. I understand that it's a marketing thing, but they really bother me, to the point that I don't want people to ask me "Did you see that thing on CNN about CF kids?" Because CF kids don't sit, looking sadly at their Creon. They down...
  4. R

    Children affected by CF

    I saw this a couple months ago on Tumblr. I hate the pictures. I understand that it's a marketing thing, but they really bother me, to the point that I don't want people to ask me "Did you see that thing on CNN about CF kids?" Because CF kids don't sit, looking sadly at their Creon. They down...
  5. R

    Do any of you still feel your lungs shaking

    Same here, I feel as if I've just gotten off a boat. It takes about 5 minutes for it to go away.
  6. R

    Do any of you still feel your lungs shaking

    Same here, I feel as if I've just gotten off a boat. It takes about 5 minutes for it to go away.
  7. R

    To the "chubby" CFers

    To the I'm at a normal weight, according to my doctors. Not overweight (according to them. I would be fine with losing a couple of pounds.) However, as others have said, the moment I get sick, I drop 5-10 pounds like /that/, and got down to an unhealthy weight last year when I was sick for...
  8. R

    To the "chubby" CFers

    To the I'm at a normal weight, according to my doctors. Not overweight (according to them. I would be fine with losing a couple of pounds.) However, as others have said, the moment I get sick, I drop 5-10 pounds like /that/, and got down to an unhealthy weight last year when I was sick for...
  9. R

    How awesome is your doctor?

    I go to Seattle Children's now, and it's wonderful. I loved the Spokane clinic, but Children's is just top-notch. I was admitted there for the first time, with doctors I had never met before, and I was comfortable within the first 15 minutes. Dr. Hoffman, the doctor I saw the first night in the...
  10. R

    How awesome is your doctor?

    I go to Seattle Children's now, and it's wonderful. I loved the Spokane clinic, but Children's is just top-notch. I was admitted there for the first time, with doctors I had never met before, and I was comfortable within the first 15 minutes. Dr. Hoffman, the doctor I saw the first night in the...
  11. R

    Any Ideas?

    Havoc: Me too. Especially since I clotted, infiltrated and crimped lines pretty much constantly last time, and live by myself. I'd be sort of worried about it, too. Bill: I'll ask about that on Friday, that would be awesome. Aboveall: I have two professors that I've had before; one had me fall...
  12. R

    Any Ideas?

    Havoc: Me too. Especially since I clotted, infiltrated and crimped lines pretty much constantly last time, and live by myself. I'd be sort of worried about it, too. Bill: I'll ask about that on Friday, that would be awesome. Aboveall: I have two professors that I've had before; one had me fall...
  13. R

    Any Ideas?

    Aboveallislove: If clinic goes badly on Friday, I'll ask to stay out until Monday evening and use Monday to go talk to my professors and the Disability Services office. I have a pretty good relationship with the disability coordinator, he was pretty helpful last time I was in in October. I think...
  14. R

    Any Ideas?

    Aboveallislove: If clinic goes badly on Friday, I'll ask to stay out until Monday evening and use Monday to go talk to my professors and the Disability Services office. I have a pretty good relationship with the disability coordinator, he was pretty helpful last time I was in in October. I think...
  15. R

    What song do you relate your CF fight to

    Breathe by Matt Scales.
  16. R

    Any Ideas?

    So, here's the story. I was hospitalized for the first time in October, in my first quarter at college, for two weeks. I was the healthiest I've ever been after I finished the two weeks in, and didn't miss a single day winter quarter for sickness. Then, spring quarter came, and I caught...
  17. R

    Any Ideas?

    So, here's the story. I was hospitalized for the first time in October, in my first quarter at college, for two weeks. I was the healthiest I've ever been after I finished the two weeks in, and didn't miss a single day winter quarter for sickness. Then, spring quarter came, and I caught...
  18. R

    Enzymes and Malabsorption?

    Hi everyone, They did an OGTT, and it was "perfect," according to the nurse. My doctor wants me to keep an eye on it, they raised my enzymes a little bit, and he hopes it goes away after finals are over. I'm attributing the sleeping to a weird finals schedule, if that continues also, I'll talk...
  19. R

    Enzymes and Malabsorption?

    Hi everyone, They did an OGTT, and it was "perfect," according to the nurse. My doctor wants me to keep an eye on it, they raised my enzymes a little bit, and he hopes it goes away after finals are over. I'm attributing the sleeping to a weird finals schedule, if that continues also, I'll talk...
  20. R

    Neb before bed?

    I got TERRIBLE shakiness and tachycardia with albuterol, so they switched me to Xopenex in both the neb and inhaler forms. While I still have a bit of shakiness with the Xopenex on the neb, it's no longer an issue with the albuterol. It's so much less noticeable, though, with the neb, definitely...
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