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    I'm desperate for hope

    Laura, I was in your position one year ago. My son just turned 1 on the 15th of August. He was diagnoised at 5 days old. When our son was diagnoised, we were told that the hope is that with the benefits of the current medical interventions that has tje current generation of CFers to a median...
  2. A

    I'm desperate for hope

    Laura, I was in your position one year ago. My son just turned 1 on the 15th of August. He was diagnoised at 5 days old. When our son was diagnoised, we were told that the hope is that with the benefits of the current medical interventions that has tje current generation of CFers to a median...
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    DF508 and 3659delC anyone??

    Hello Elle, I too have a 6 month old with DF508 and 3659delC and I have only been able find two other people with that combo. They were siblings, both in their 20's. I found them on another forum several months ago. I got the impression that they had moderate issues. How is your daughter...
  4. A

    DF508 and 3659delC anyone??

    Hello Elle, I too have a 6 month old with DF508 and 3659delC and I have only been able find two other people with that combo. They were siblings, both in their 20's. I found them on another forum several months ago. I got the impression that they had moderate issues. How is your daughter...
  5. A

    DF508 and 3659delC anyone??

    Hello Elle, I too have a 6 month old with DF508 and 3659delC and I have only been able find two other people with that combo. They were siblings, both in their 20's. I found them on another forum several months ago. I got the impression that they had moderate issues. How is your daughter...
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    Mom of newly diagnosed baby venturing onto the site for the first time

    Hi, I started reading this site tonight and felt such a conncetion that I decided to post. I have a 6 month old boy who was diagnosed with CF at 1 week old when his newborn screening came back positive. My husband and I new, before we even had a sweat test that he had CF. His newborn...
  7. A

    Mom of newly diagnosed baby venturing onto the site for the first time

    Hi, I started reading this site tonight and felt such a conncetion that I decided to post. I have a 6 month old boy who was diagnosed with CF at 1 week old when his newborn screening came back positive. My husband and I new, before we even had a sweat test that he had CF. His newborn...
  8. A

    Mom of newly diagnosed baby venturing onto the site for the first time

    Hi, I started reading this site tonight and felt such a conncetion that I decided to post. I have a 6 month old boy who was diagnosed with CF at 1 week old when his newborn screening came back positive. My husband and I new, before we even had a sweat test that he had CF. His newborn...
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