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  1. beautifulsoul

    clinic's protocol for antibiotics?

    I just had a cold 2 months ago. They prescribed me Levaquin for 10 days. Albuterol every 6 hours as needed.
  2. beautifulsoul

    Times are a changing...and I DONT like it!

    I can't tell you 100% it will get better after transplant. Everyone has different outcomes but the majority of the post transplant stories I have read about are successful. I'm Facebook friends with several adults who have had amazing lives after transplant. Myself included. Keep your head up...
  3. beautifulsoul

    Amikacin Recalled

    Yes, I used this long term which caused complete deafness from it when I was 12 years old. I now have Cochlear Implants.
  4. beautifulsoul

    NEW Relizorb enzymes (for those with G-tubes)

    There is a fairly new enzyme cartridge available for those with g-tubes. It connects straight onto your tubing. I've been using it for about 2 weeks now and I love it! No more taking oral enzymes before and after tube feedings. Relizorb has made me feel less full in the morning. Hardly any...
  5. beautifulsoul

    We remember Frank Deford

    Heartbreaking and beautiful story. I'm sure they are happy together now.
  6. beautifulsoul

    Celebrating 10 years of new life!

    Thank you so much Muscle! I agree, God blesses us daily!
  7. beautifulsoul

    Online Streaming Service

    If you're sick, not feeling 100% or stuck in the hospital the church I've been attending offers online live streaming at several different times on Sunday. This is a nondenominational church. Younger people love it but all ages attend. Great music and sermons. It's Crossroads church in...
  8. beautifulsoul

    Cystic fibrosis patients survive 10 years longer in Canada than in US

    Wow, very interesting diet facts! The first thing that came to mind when I saw this article on Facebook was "well of course because OUR insurances and healthcare system is a mess!!" Thanks for sharing. Hugs,
  9. beautifulsoul

    Transplant and sinusitis

    Yes, I've had to deal with this the past 5 years or so. ENT has prescribed daily sinus rinses, saline spray & Flonase. As well as daily Zyrtec. I've also had recurring nasal polyps which need to be removed every 1-2 years. I've never had rejection because of this.
  10. beautifulsoul

    Celebrating 10 years of new life!

    Wow, Thank you for your kind words Stephen! Jeanne- The forums kept me going during those difficult times. I loved the chat room. Thank you for your support all these years. jricci- I'm glad I could lift your spirits up in some small way today. Keep your head up. You got this! Hugs,
  11. beautifulsoul

    Celebrating 10 years of new life!

    This is something I posted on my personal Facebook page earlier today. I realize not everyone has Facebook so I decided to share it here as well. Dear Friends & Family, Today as I sit here typing this I can think of two words to describe my life. Thankful & Blessed. The feelings I have right...
  12. beautifulsoul

    DiOS

    LittleLab you reminded me of something an attending Dr. said to me while I was in the hospital last year. I payed little attention to her opinion since she wasn't MY dr. I remember she had mentioned something about Reglan being dangerous because of how it affected facial nerves in *some* people...
  13. beautifulsoul

    DiOS

    My personal regimen is: 2-3 capfuls of Miralax everyday, Stool Softener gel cap twice a day and Reglan because of slow emptying. I also take Maalox as needed. Have you been tested to see how fast your stomach is digesting? If your food is taking too long to digest it will cause a back up...
  14. beautifulsoul

    Considering Phoenix

    Definitely ask or research online what their survival success rates are if you haven't yet. That will tell you a lot. I found this.https://www.dignityhealth.org/stjosephs/services/lung-disease/services-and-programs/lung-transplant-program Hopefully it's the correct website. It looks like they...
  15. beautifulsoul

    Moving Temporarily for a Transplant

    I'm unable to help you with these specific questions as my transplant center was only 5 hours away. It was from my understanding at the time that any center FURTHER than 5 hours it was necessary to move permanently for quite some time. Luckily my center (Pittsburgh) was one of the best centers...
  16. beautifulsoul

    Remedy for sore stomach muscles from coughing

    Electric blanket or heating pad but don't use those if you're wearing oxygen obviously. Tylenol-Acetaminophen may help some if you are unable to take NSAIDS. Hugs,
  17. beautifulsoul

    Physical Therapy

    If they are unable to grant your needs as aboveallislove mentioned definitely a mask and gloves too! Maybe change into different clothes when you arrive home from work? I hope you can find a workable solution! Hugs,
  18. beautifulsoul

    Making dreams come trud despite "healthy" people

    Very glad to hear she was excepted elsewhere! I auditioned to attend a performing art's school here in America when I was 10 years old but I was rejected. While the reasoning was not explained I'm 100% percent sure they turned me down because of my sickness. Not everyone will see past the talent...
  19. beautifulsoul

    confused about diagnosis

    I can only imagine your frustration. Hopefully a few of the other active mom's on here will chime in. From my knowledge the Gold Standard for CF screening is a sweat test. Are you seeing Dr.'s at an accredited CF center? If you're not I highly suggest looking into a hospital with CF credentials...
  20. beautifulsoul

    Toe Nail Fungus

    Thank you! I will look into it :)
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