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Re. those that have been told Mucinex has a drying effect... I don't understand that at all. Guaifenesin (as an expectorant) helps loosen up mucus by thinning it, it is antihistamines- a different type of drug entirely- that dry it out. I'd think those with CF would benefit from products that...

I did not want Emily to get the PEG first; I felt strongly about her having one procedure and the button from the start. However, not all drs will do it this way so you need to ask about it ahead of time. In our case, the GI she had been seeing starts with the long PEG (placed endoscopically...

I did not want Emily to get the PEG first; I felt strongly about her having one procedure and the button from the start. However, not all drs will do it this way so you need to ask about it ahead of time. In our case, the GI she had been seeing starts with the long PEG (placed endoscopically...

I did not want Emily to get the PEG first; I felt strongly about her having one procedure and the button from the start. However, not all drs will do it this way so you need to ask about it ahead of time. <br /> <br />In our case, the GI she had been seeing starts with the long PEG (placed...

Re. the gain of a pound: I can see how this would have been disappointing. However, it's normal for it to take some time (a matter of months) to start seeing good gains from tube feeding. It takes a while to get up to the rate and number of calories that will allow for gain, and sometimes the...

Re. the gain of a pound: I can see how this would have been disappointing. However, it's normal for it to take some time (a matter of months) to start seeing good gains from tube feeding. It takes a while to get up to the rate and number of calories that will allow for gain, and sometimes the...

Re. the gain of a pound: I can see how this would have been disappointing. However, it's normal for it to take some time (a matter of months) to start seeing good gains from tube feeding. It takes a while to get up to the rate and number of calories that will allow for gain, and sometimes the...

Emily has been running intermittent low-grade fevers for more than 6mo now... it's driving me crazy because it affects her QOL and has been responsible for her missing a lot of school and no one seems to know why it's happening. It happens MORE around the time of her exacerbations, but not...

Emily has been running intermittent low-grade fevers for more than 6mo now... it's driving me crazy because it affects her QOL and has been responsible for her missing a lot of school and no one seems to know why it's happening. It happens MORE around the time of her exacerbations, but not...

Emily has been running intermittent low-grade fevers for more than 6mo now... it's driving me crazy because it affects her QOL and has been responsible for her missing a lot of school and no one seems to know why it's happening. It happens MORE around the time of her exacerbations, but not...

I'm so sorry you are going through this with your boys. My daughter just had a tube placed about 6mo ago after struggling with growth and weight gain for years so I know what it takes to reach this point. She is 9- same age your boys were when they first got theirs. I am trying to understand...

I'm so sorry you are going through this with your boys. My daughter just had a tube placed about 6mo ago after struggling with growth and weight gain for years so I know what it takes to reach this point. She is 9- same age your boys were when they first got theirs. I am trying to understand...

I'm so sorry you are going through this with your boys. My daughter just had a tube placed about 6mo ago after struggling with growth and weight gain for years so I know what it takes to reach this point. She is 9- same age your boys were when they first got theirs. <br /> <br />I am trying to...

Here are statistics of the centers in this area/discussed in this thread; listed in order of their average lung function. As I've posted before, numbers only tell part of the story (they won't tell you how personable the team is, etc), but it's an important part to know going in when choosing a...

Here are statistics of the centers in this area/discussed in this thread; listed in order of their average lung function. As I've posted before, numbers only tell part of the story (they won't tell you how personable the team is, etc), but it's an important part to know going in when choosing a...

Here are statistics of the centers in this area/discussed in this thread; listed in order of their average lung function. As I've posted before, numbers only tell part of the story (they won't tell you how personable the team is, etc), but it's an important part to know going in when choosing a...

Congratulations!! <img src="i/expressions/heart.gif" border="0">

Congratulations!! <img src="i/expressions/heart.gif" border="0">

Congratulations!! <img src="i/expressions/heart.gif" border="0">

We are recommended to give Emily her enzymes right as she starts eating, and if she eats again more than an hour later, we give her more. This is because there is a limited window of time they will be effective. Giving them to her an hour before she even starts eating would be useless: there...