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Rhodotorula culture and I truly understand your feelings about those culture results. When Emily was first dx'ed, the first culture results told us she was growing staph and I was SO freaked out. To think of bacteria just lurking in her lungs grossed me out to no end and when we were told...

Rhodotorula culture and I truly understand your feelings about those culture results. When Emily was first dx'ed, the first culture results told us she was growing staph and I was SO freaked out. To think of bacteria just lurking in her lungs grossed me out to no end and when we were told...

Rhodotorula culture and I truly understand your feelings about those culture results. When Emily was first dx'ed, the first culture results told us she was growing staph and I was SO freaked out. To think of bacteria just lurking in her lungs grossed me out to no end and when we were told...

Re. the CF test that was done initially that turned up negative: I missed your mention that your child had a normal NBS for CF. As recently as 6yrs ago many states were not even screening for CF yet! My state was one of the last to mandate it and this only occurred in the last year. However...

Re. the CF test that was done initially that turned up negative: I missed your mention that your child had a normal NBS for CF. As recently as 6yrs ago many states were not even screening for CF yet! My state was one of the last to mandate it and this only occurred in the last year. However...

Re. the CF test that was done initially that turned up negative: <br />I missed your mention that your child had a normal NBS for CF. As recently as 6yrs ago many states were not even screening for CF yet! My state was one of the last to mandate it and this only occurred in the last year...

That is a good point and I understand why you'd want to be able to let the affected side of the family know. Be aware that this may be guilt-provoking if you decide to go through with it, though (moreso than you think right now.) That being the case, I am glad my parents did not choose to do...

That is a good point and I understand why you'd want to be able to let the affected side of the family know. Be aware that this may be guilt-provoking if you decide to go through with it, though (moreso than you think right now.) That being the case, I am glad my parents did not choose to do...

That is a good point and I understand why you'd want to be able to let the affected side of the family know. Be aware that this may be guilt-provoking if you decide to go through with it, though (moreso than you think right now.) That being the case, I am glad my parents did not choose to do...

Rhodotorula is a rare fungi (classified as a yeast, as opposed to a filamentous fungi, i.e. aspergillus) that can turn up on culture results. It's one of those things that is found everywhere... air, soil, water (lake or ocean), and food. I was able to find this info about what it is and how...

Rhodotorula is a rare fungi (classified as a yeast, as opposed to a filamentous fungi, i.e. aspergillus) that can turn up on culture results. It's one of those things that is found everywhere... air, soil, water (lake or ocean), and food. I was able to find this info about what it is and how...

Rhodotorula is a rare fungi (classified as a yeast, as opposed to a filamentous fungi, i.e. aspergillus) that can turn up on culture results. It's one of those things that is found everywhere... air, soil, water (lake or ocean), and food. I was able to find this info about what it is and how...

I can understand your fears. It's a very overwhelming thing to be presented with a dx like this by your child's dr. We knew something was wrong for a long time with our daughter but it was still quite a blow to be told by the dr that we needed to test for cf- I never saw it coming. And it was...

I can understand your fears. It's a very overwhelming thing to be presented with a dx like this by your child's dr. We knew something was wrong for a long time with our daughter but it was still quite a blow to be told by the dr that we needed to test for cf- I never saw it coming. And it was...

I can understand your fears. It's a very overwhelming thing to be presented with a dx like this by your child's dr. We knew something was wrong for a long time with our daughter but it was still quite a blow to be told by the dr that we needed to test for cf- I never saw it coming. And it was...

It makes sense to me that better health= better weight. They use SO many more calories on their respiratory function when they are sick, and probably an increased amount even when just fighting things off. As you know, the whole reason Emily needed the tube was due to how much she'd lose...

It makes sense to me that better health= better weight. They use SO many more calories on their respiratory function when they are sick, and probably an increased amount even when just fighting things off. As you know, the whole reason Emily needed the tube was due to how much she'd lose...

It makes sense to me that better health= better weight. They use SO many more calories on their respiratory function when they are sick, and probably an increased amount even when just fighting things off. As you know, the whole reason Emily needed the tube was due to how much she'd lose...

DF508 is also tested for on every single panel test~ any test the dr orders (i.e. the cheap 37 mutation panels) will always include that one. In our case as well, that's the gene I carry and it's so much easier to catch that one than some obscure one requiring expensive testing. It's tough in...

DF508 is also tested for on every single panel test~ any test the dr orders (i.e. the cheap 37 mutation panels) will always include that one. In our case as well, that's the gene I carry and it's so much easier to catch that one than some obscure one requiring expensive testing. It's tough in...