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I have no idea but I have developed the worst night sweats ever, I do have horrible reflux and I take two different meds for it.. I was attributing the night sweats to the MAC but I don't know....

That is so exciting to hear. Congrats. I am glad you are calling the CF legal hotline. Beth is amazing at giving out advice. I am on SSDI, which is different then SSI because it is based on my work history. I am also on the "working disabled" In SC it is still medicaid but I am allowed to make...

That is so exciting to hear. Congrats. I am glad you are calling the CF legal hotline. Beth is amazing at giving out advice. I am on SSDI, which is different then SSI because it is based on my work history. I am also on the "working disabled" In SC it is still medicaid but I am allowed to make...

That is so exciting to hear. Congrats. I am glad you are calling the CF legal hotline. Beth is amazing at giving out advice. <br /> <br />I am on SSDI, which is different then SSI because it is based on my work history. I am also on the "working disabled" In SC it is still medicaid but I am...

it is not just for CFers that are predisposed, anyone with a chronic lung condition is, I was on Zithro Daily, 250 for several years and just recently cultured MAC... My zithro was stopped immediately as well. I am seeing Infectious disease at the end of the month to see how they are going to...

it is not just for CFers that are predisposed, anyone with a chronic lung condition is, I was on Zithro Daily, 250 for several years and just recently cultured MAC... My zithro was stopped immediately as well. I am seeing Infectious disease at the end of the month to see how they are going to...

it is not just for CFers that are predisposed, anyone with a chronic lung condition is, I was on Zithro Daily, 250 for several years and just recently cultured MAC... My zithro was stopped immediately as well. I am seeing Infectious disease at the end of the month to see how they are going to...

That is a lot of a preteen to take in. It sounds like he is depressed. I would maybe hook him up on the Cystic Fibrosis Foundation page, I think they have a link for teens there. I would also find other avenues for him to express his fears and concerns, maybe therapy. He most likely is afraid...

That is a lot of a preteen to take in. It sounds like he is depressed. I would maybe hook him up on the Cystic Fibrosis Foundation page, I think they have a link for teens there. I would also find other avenues for him to express his fears and concerns, maybe therapy. He most likely is afraid...

That is a lot of a preteen to take in. It sounds like he is depressed. I would maybe hook him up on the Cystic Fibrosis Foundation page, I think they have a link for teens there. I would also find other avenues for him to express his fears and concerns, maybe therapy. <br /> <br />He most...

I am so sincerely sorry... I wish I had words for you.....I don't talk to that doctor any more that did that research, she is a brilliant doctor though and she was really on to something with having CFers get tested sooner... I can not imagine what you are feeling, dealing with, and going...

I am so sincerely sorry... I wish I had words for you.....I don't talk to that doctor any more that did that research, she is a brilliant doctor though and she was really on to something with having CFers get tested sooner... I can not imagine what you are feeling, dealing with, and going...

I am so sincerely sorry... I wish I had words for you.....I don't talk to that doctor any more that did that research, she is a brilliant doctor though and she was really on to something with having CFers get tested sooner... <br /> <br />I can not imagine what you are feeling, dealing with, and...

I literally qualified for medicaid to the exact dollar, I think for I was allowed to make 905 dollars a month from SSDI and they have a 20 dollar grace rule, I make on SSDI 922.00 a month, plus I am allowed to earn on my own one thousand dollars a month or less, so when I can I still work one...

I literally qualified for medicaid to the exact dollar, I think for I was allowed to make 905 dollars a month from SSDI and they have a 20 dollar grace rule, I make on SSDI 922.00 a month, plus I am allowed to earn on my own one thousand dollars a month or less, so when I can I still work one...

I literally qualified for medicaid to the exact dollar, I think for I was allowed to make 905 dollars a month from SSDI and they have a 20 dollar grace rule, I make on SSDI 922.00 a month, plus I am allowed to earn on my own one thousand dollars a month or less, so when I can I still work one...

Thanks for your reply... I hate Medicaid except for the cost of it. They deny just about everything that my doctor orders, or prescribes the first time around. It took several months to get approval of xopenex for me, they insisted on albuteral in spite of my tachy heart rate. They refused to...

Thanks for your reply... I hate Medicaid except for the cost of it. They deny just about everything that my doctor orders, or prescribes the first time around. It took several months to get approval of xopenex for me, they insisted on albuteral in spite of my tachy heart rate. They refused to...

Thanks for your reply... I hate Medicaid except for the cost of it. They deny just about everything that my doctor orders, or prescribes the first time around. It took several months to get approval of xopenex for me, they insisted on albuteral in spite of my tachy heart rate. They refused to...

I don't blame you one bit, better to ruffle feathers then to expose your child. That being said, I am currently on oxygen and I feel so stupid being out in public with it, so much so, that sometimes I don't wear it. I don't think you could have done anything different. Since your kids don't...