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Megan....there are many factors that go into determining whether someone needs a lung transplant as I am sure you are aware. There are many things that come up for us over the years. I don't think we can ever point to one thing as a determining factor. I totally understand your frustration though.

Megan....I will try this one...I am certainly no expert though. Your doc may be referring to the residual volume or what is left in your lungs after you have done a full expiration of all of your breath. It is hard to get all the air out as our lungs get worn. I would think exercise would help...

I am not sure how to put this so bare with me. I have not been in the CF clinic world for very long. I have only recently....the last 5 years....gone to an accredited center. My early experience was fabulous with a doctor who listened and was very much into proactive care. He is gone now though...

I am not sure how to put this so bare with me. I have not been in the CF clinic world for very long. I have only recently....the last 5 years....gone to an accredited center. My early experience was fabulous with a doctor who listened and was very much into proactive care. He is gone now though...

I am not sure how to put this so bare with me. I have not been in the CF clinic world for very long. I have only recently....the last 5 years....gone to an accredited center. My early experience was fabulous with a doctor who listened and was very much into proactive care. He is gone now though...

I am not sure how to put this so bare with me. I have not been in the CF clinic world for very long. I have only recently....the last 5 years....gone to an accredited center. My early experience was fabulous with a doctor who listened and was very much into proactive care. He is gone now though...

I am not sure how to put this so bare with me. I have not been in the CF clinic world for very long. I have only recently....the last 5 years....gone to an accredited center. My early experience was fabulous with a doctor who listened and was very much into proactive care. He is gone now though...

Caitlin.....this totally sounds like a reflux problem to me. Have you ever had any problems with that? Often times when we are laying in bed "stuff" from our earlier meal comes back up and irritates the throat and can sometimes get to the lungs. Do you take nexium or other? It is NOT always the...

Caitlin.....this totally sounds like a reflux problem to me. Have you ever had any problems with that? Often times when we are laying in bed "stuff" from our earlier meal comes back up and irritates the throat and can sometimes get to the lungs. Do you take nexium or other? It is NOT always the...

Caitlin.....this totally sounds like a reflux problem to me. Have you ever had any problems with that? Often times when we are laying in bed "stuff" from our earlier meal comes back up and irritates the throat and can sometimes get to the lungs. Do you take nexium or other? It is NOT always the...

Caitlin.....this totally sounds like a reflux problem to me. Have you ever had any problems with that? Often times when we are laying in bed "stuff" from our earlier meal comes back up and irritates the throat and can sometimes get to the lungs. Do you take nexium or other? It is NOT always the...

Caitlin.....this totally sounds like a reflux problem to me. Have you ever had any problems with that? Often times when we are laying in bed "stuff" from our earlier meal comes back up and irritates the throat and can sometimes get to the lungs. Do you take nexium or other? It is NOT always the...

I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session. Tips.....put sterile water into the vial a bit slowly, do not shake...

I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session. Tips.....put sterile water into the vial a bit slowly, do not shake...

I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session. Tips.....put sterile water into the vial a bit slowly, do not shake...

I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session. Tips.....put sterile water into the vial a bit slowly, do not shake...

I was hesitant to use it for a very long time....foaming, hard to use. I don't mind it at all. It made me SOB until I did the right inhaler before.....xoponex 1.25.....and I lowered the dose to 75 instead of 150 per session. <br /> <br />Tips.....put sterile water into the vial a bit slowly, do...

I have a Pari Eflow as part of the AZLI study. I have already contacted my center....so they will call back soon. I just wondered if anyone has had this happen or has any suggestions.I am in a study so the eflow service dept. said they can't answer any of my questions<img...

I have a Pari Eflow as part of the AZLI study. I have already contacted my center....so they will call back soon. I just wondered if anyone has had this happen or has any suggestions.I am in a study so the eflow service dept. said they can't answer any of my questions<img...

I have a Pari Eflow as part of the AZLI study. I have already contacted my center....so they will call back soon. I just wondered if anyone has had this happen or has any suggestions.I am in a study so the eflow service dept. said they can't answer any of my questions<img...