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  1. M

    Physio for 3 Year Old

    Am mother of 3 yr old with DDf508 from India. Doctor here suggested a vest and we are sourcing one from hill rom India . We here do not get dornase alfa so I guess vest is a good buy in a situation as this. Till now we regularly did postural drainage 1-3 times a day depending on his cough...
  2. M

    mucus clearing massage?

    Postural drainage helps. There are few videos on YouTube about it.
  3. M

    Cellgevity..sounds amazing anyone taking it??

    . How is it. Any changes in mucos viscosity or infection frequency. Any positive changes.... Please help me understand it.
  4. M

    Cellgevity..sounds amazing anyone taking it??

    Immunocal I guess is similar product. Has any one tried it on? How was it? I am trying to search for the best cysteine product. Any other products which help in glutathione generation...? Mother of CF boy 3 years.
  5. M

    Anyone who took respiratory scleratoma massages.

    Hi, Am mother of 3yrs old boy with double copy of df508. I am actively pursuing alternative medicine for my son. A naturopath I consulted suggested me about dr Kauffman's scleratoma techniques to deal with my sons frequent lung infections. He has given me few internet links (below) to...
  6. M

    Pulmozyme temperature

    Hi , I just got to know about pulmozyme from this thread. Am Mother of a CF baby boy of 3 years and from India where CF is considered rare and medication for it is extremely rare. Pray tell me how effective it is and it's cost so that I can give this info to my sons ped and try source it from...
  7. M

    2 Year old daughter recently diagnosed with CF

    Hi Kapil, I am trying naturopathy and this is certainly better than other pathys. Heard there are good naturopaths in Delhi and that there is a institute in Simla. You should definitely try. Or give lots of fruits and sprouts in your daughters diet. Working to considerable extent.
  8. M

    2 Year old daughter recently diagnosed with CF

    Hi Kapil, We are Parents of 2.8 yrs old baby boy with CF Mutation F508delta from Bangalore. Hope your Baby is doing fine. I guess CF in Indian Scenario is different. My son has frequent infections and problems with Mal absorption. He always had problem gaining weight but not height. It took...
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