Am mother of 3 yr old with DDf508 from India. Doctor here suggested a vest and we are sourcing one from hill rom India . We here do not get dornase alfa so I guess vest is a good buy in a situation as this. Till now we regularly did postural drainage 1-3 times a day depending on his cough...
Immunocal I guess is similar product. Has any one tried it on? How was it? I am trying to search for the best cysteine product. Any other products which help in glutathione generation...?
Mother of CF boy 3 years.
Hi,
Am mother of 3yrs old boy with double copy of df508. I am actively pursuing alternative medicine for my son. A naturopath I consulted suggested me about dr Kauffman's scleratoma techniques to deal with my sons frequent lung infections. He has given me few internet links (below) to...
Hi ,
I just got to know about pulmozyme from this thread. Am Mother of a CF baby boy of 3 years and from India where CF is considered rare and medication for it is extremely rare. Pray tell me how effective it is and it's cost so that I can give this info to my sons ped and try source it from...
Hi Kapil, I am trying naturopathy and this is certainly better than other pathys. Heard there are good naturopaths in Delhi and that there is a institute in Simla. You should definitely try. Or give lots of fruits and sprouts in your daughters diet.
Working to considerable extent.
Hi Kapil,
We are Parents of 2.8 yrs old baby boy with CF Mutation F508delta from Bangalore. Hope your Baby is doing fine.
I guess CF in Indian Scenario is different. My son has frequent infections and problems with Mal absorption. He always had problem gaining weight but not height. It took...
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.