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  1. M

    Improving Lung Function in Child

    Any activity is better than no activity. Growing up I was involved in tons of organized sports both in and out of school and that was very important. As soon as I graduated and stopped most of my activities I started getting sick a lot more and my pfts started dropping. Another good thing is...
  2. M

    Anyone having trouble with their hospital

    You are your child's advocate and it's your job to speak up when you see something not being done right or safely. We have a family council at our cf clinic to bring up these kinds of concerns, etc. Have you talked to your son's cf doc about these things or are they part of the problem? If...
  3. M

    Inspiration Books

    If you want a good CF inspirational book try The Seven Letter that Saved My Life by Dottie Lessard, she posts on here sometimes. It's a great book but doubly so if you are or have ever been an athlete!
  4. M

    Inspiration Books

    If you want a good CF inspirational book try The Seven Letter that Saved My Life by Dottie Lessard, she posts on here sometimes. It's a great book but doubly so if you are or have ever been an athlete!
  5. M

    Inspiration Books

    If you want a good CF inspirational book try The Seven Letter that Saved My Life by Dottie Lessard, she posts on here sometimes. It's a great book but doubly so if you are or have ever been an athlete!
  6. M

    Question about CF'ers and alcohol

    Sounds like an allergic reaction. I've drank a lot of jäger before and other harder stuff and never had anything happen.
  7. M

    Question about CF'ers and alcohol

    Sounds like an allergic reaction. I've drank a lot of jäger before and other harder stuff and never had anything happen.
  8. M

    Question about CF'ers and alcohol

    Sounds like an allergic reaction. I've drank a lot of jäger before and other harder stuff and never had anything happen.
  9. M

    Concerned about negative effects of meds

    As far as tobi goes the hearing loss is a side effect of long term repeated use of iv tobramycin. I have been using it for probably 12+ years and while I do have minor hearing loss it's not enough that I notice. Generally if you have 2 or more courses of iv tobramycin in a 12 month period that's...
  10. M

    Concerned about negative effects of meds

    As far as tobi goes the hearing loss is a side effect of long term repeated use of iv tobramycin. I have been using it for probably 12+ years and while I do have minor hearing loss it's not enough that I notice. Generally if you have 2 or more courses of iv tobramycin in a 12 month period that's...
  11. M

    Concerned about negative effects of meds

    As far as tobi goes the hearing loss is a side effect of long term repeated use of iv tobramycin. I have been using it for probably 12+ years and while I do have minor hearing loss it's not enough that I notice. Generally if you have 2 or more courses of iv tobramycin in a 12 month period that's...
  12. M

    PICC problems?

    I had a collapsed lung a couple of years ago and the only symptom I had was my heart started racing when I walked too far. I didn't have shortness of breath or pain and I walked around like that for over a week before we figured out what it was. When it finally did hurt my chest and back hurt on...
  13. M

    PICC problems?

    I had a collapsed lung a couple of years ago and the only symptom I had was my heart started racing when I walked too far. I didn't have shortness of breath or pain and I walked around like that for over a week before we figured out what it was. When it finally did hurt my chest and back hurt on...
  14. M

    PICC problems?

    I had a collapsed lung a couple of years ago and the only symptom I had was my heart started racing when I walked too far. I didn't have shortness of breath or pain and I walked around like that for over a week before we figured out what it was. When it finally did hurt my chest and back hurt on...
  15. M

    PICC problems?

    You might want to have a chest x-ray to rule out collapsed lung. Chest pain, shortness of breath and drop in pfts can all be caused by that.
  16. M

    PICC problems?

    You might want to have a chest x-ray to rule out collapsed lung. Chest pain, shortness of breath and drop in pfts can all be caused by that.
  17. M

    PICC problems?

    You might want to have a chest x-ray to rule out collapsed lung. Chest pain, shortness of breath and drop in pfts can all be caused by that.
  18. M

    Antacid

    I've taken prilosec for several years and it's worked great for me
  19. M

    Antacid

    I've taken prilosec for several years and it's worked great for me
  20. M

    Antacid

    I've taken prilosec for several years and it's worked great for me
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