Search results

  1. M

    oxygen use

    First I know most insurance companies won't pay for oxygen at home if your pulse ox doesn't drop to 88% or below. When I started using oxygen it was only at night and that wasn't too bad. Now I am supposed to wear it all the time and for me that's been hard to get use to. I don't mind so much...
  2. M

    Input

    I'm sometimes still wheezy on Prednisone, sometimes it takes the full course to clear it up. Is she on any asthma medication? If she's not and she continues to be wheezy it might be something to ask about when you talk to her doctor.
  3. M

    Input

    I'm sometimes still wheezy on Prednisone, sometimes it takes the full course to clear it up. Is she on any asthma medication? If she's not and she continues to be wheezy it might be something to ask about when you talk to her doctor.
  4. M

    Input

    I'm sometimes still wheezy on Prednisone, sometimes it takes the full course to clear it up. Is she on any asthma medication? If she's not and she continues to be wheezy it might be something to ask about when you talk to her doctor.
  5. M

    CF education day

    When I was little it was always a big event with tons if families and their kids, now our center discourages patient attendance and try to encourage parents and care givers to come. They do tape the day for patients who don't attend, and some patients do go anyway
  6. M

    CF education day

    When I was little it was always a big event with tons if families and their kids, now our center discourages patient attendance and try to encourage parents and care givers to come. They do tape the day for patients who don't attend, and some patients do go anyway
  7. M

    CF education day

    When I was little it was always a big event with tons if families and their kids, now our center discourages patient attendance and try to encourage parents and care givers to come. They do tape the day for patients who don't attend, and some patients do go anyway
  8. M

    Do you have friends with CF?

    Well you are not alone in that feeling, I am 22 and up until 3 months ago I didn't have any cf friends either. It wasn't until I was contacted by a fellow cfer who read a news article about me waiting for transplant that I made any friends and now I have a lot that I talk to online and 5 that I...
  9. M

    Do you have friends with CF?

    Well you are not alone in that feeling, I am 22 and up until 3 months ago I didn't have any cf friends either. It wasn't until I was contacted by a fellow cfer who read a news article about me waiting for transplant that I made any friends and now I have a lot that I talk to online and 5 that I...
  10. M

    Do you have friends with CF?

    Well you are not alone in that feeling, I am 22 and up until 3 months ago I didn't have any cf friends either. It wasn't until I was contacted by a fellow cfer who read a news article about me waiting for transplant that I made any friends and now I have a lot that I talk to online and 5 that I...
  11. M

    Tonsils

    I don't have personal experience with this but I do know that if you wait to have them out as an adult it's much worse/more painful then having them out as a kid. I have a cf friend who is post transplant but she had her tonsils out at age 27 and she said she was in bed for a week. My brother...
  12. M

    Tonsils

    I don't have personal experience with this but I do know that if you wait to have them out as an adult it's much worse/more painful then having them out as a kid. I have a cf friend who is post transplant but she had her tonsils out at age 27 and she said she was in bed for a week. My brother...
  13. M

    Tonsils

    I don't have personal experience with this but I do know that if you wait to have them out as an adult it's much worse/more painful then having them out as a kid. I have a cf friend who is post transplant but she had her tonsils out at age 27 and she said she was in bed for a week. My brother...
  14. M

    Tonsils

    I don't have personal experience with this but I do know that if you wait to have them out as an adult it's much worse/more painful then having them out as a kid. I have a cf friend who is post transplant but she had her tonsils out at age 27 and she said she was in bed for a week. My brother...
  15. M

    Tonsils

    I don't have personal experience with this but I do know that if you wait to have them out as an adult it's much worse/more painful then having them out as a kid. I have a cf friend who is post transplant but she had her tonsils out at age 27 and she said she was in bed for a week. My brother...
  16. M

    Tonsils

    I don't have personal experience with this but I do know that if you wait to have them out as an adult it's much worse/more painful then having them out as a kid. I have a cf friend who is post transplant but she had her tonsils out at age 27 and she said she was in bed for a week. My brother...
  17. M

    Really Sick after Antibiotics

    I have low grade fevers when I'm off iv meds but my pfts are 22% right now and they have said it's just because my body is working harder to fight without the abx. Definitely you should bring it up with your doc though.
  18. M

    Really Sick after Antibiotics

    I have low grade fevers when I'm off iv meds but my pfts are 22% right now and they have said it's just because my body is working harder to fight without the abx. Definitely you should bring it up with your doc though.
  19. M

    Really Sick after Antibiotics

    I have low grade fevers when I'm off iv meds but my pfts are 22% right now and they have said it's just because my body is working harder to fight without the abx. Definitely you should bring it up with your doc though.
  20. M

    antacids question

    I have been taking prilosec for several years and it has worked well for me
Top