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Forgot to post the link. http://www.cfgirlseyeofthetiger.com/blog/2012/03/27/One-week-left.aspx

Forgot to post the link. http://www.cfgirlseyeofthetiger.com/blog/2012/03/27/One-week-left.aspx

She has a more current post on her blog. Her lung function went up another 3% for a total of 14% in 3 weeks. WOW!! Let's just hope she's not an anomalie.

She has a more current post on her blog. Her lung function went up another 3% for a total of 14% in 3 weeks. WOW!! Let's just hope she's not an anomalie.

The 661 seems to be doing as good as 770 did and I know that vertex is really excited about it. 809 however got the axe and clinical trials for it are being terminated.

The 661 seems to be doing as good as 770 did and I know that vertex is really excited about it. 809 however got the axe and clinical trials for it are being terminated.

Yes. I do believe that you can have CF and still pass a sweat test even though the results are usually higher than 6. It really sounds like you have alot of the symptoms and should be doing treatments like a CF person would to control the bacteria and bronchiectasis in your lungs. If you really...

Yes. I do believe that you can have CF and still pass a sweat test even though the results are usually higher than 6. It really sounds like you have alot of the symptoms and should be doing treatments like a CF person would to control the bacteria and bronchiectasis in your lungs. If you really...

I know that once my kid finishes her tobi cycle she starts getting gunky right away.

I know that once my kid finishes her tobi cycle she starts getting gunky right away.

Ya but that could change here in the near future. Does anybody know if the rumor is true that they changed the vx-809 trial to include DF508 heterozytes because the drug wasn't being successful enough on the double deltas and they wanted to see if it would work on other mutations?

Ya but that could change here in the near future. Does anybody know if the rumor is true that they changed the vx-809 trial to include DF508 heterozytes because the drug wasn't being successful enough on the double deltas and they wanted to see if it would work on other mutations?

I saw him live at the filmore in '85. He changed sparkly leotards 7 times during the show.

I saw him live at the filmore in '85. He changed sparkly leotards 7 times during the show.

Yea, all of them. They're all awesome and unique.

Yea, all of them. They're all awesome and unique.

Maybe you don't live near a participating center.

Maybe you don't live near a participating center.

Yep! Looks like you pretty much have to live on the east coast or in Missouri to participate in this study.

Yep! Looks like you pretty much have to live on the east coast or in Missouri to participate in this study.