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Ya stay away from humidifiers unless you want her to start growing mold in her lungs. If anything I'd go with a de-humidifier with air purification system but really they can pick up these bugs anywhere so whats the point.

It just seems like everyone who is against the healthcare bill is under the false assumption that the government is going to be providing them health insurance and making decisions about their medications based on budget cuts. We already have government health care programs for people who can't...

symptomatic carrier? It works the best on G551D and other similar gating mutations but some people with completely different class mutations also had extraordinary improvements with it. Even a few people on here have gotten their doctor to write them prescriptions for it without a gating...

symptomatic carrier? It works the best on G551D and other similar gating mutations but some people with completely different class mutations also had extraordinary improvements with it. Even a few people on here have gotten their doctor to write them prescriptions for it without a gating...

symptomatic carrier? You should try getting a prescription for kalydeco and see if that helps. I've never thought about it before but symptomatic carriers are another subset of the population that may benefit significantly from this new drug.

symptomatic carrier? You should try getting a prescription for kalydeco and see if that helps. I've never thought about it before but symptomatic carriers are another subset of the population that may benefit significantly from this new drug.

Demand to be referred to a CF specialist. You're the best advocate for your child's health.

Demand to be referred to a CF specialist. You're the best advocate for your child's health.

Your doctor is an idiot for making that comment about family history when so little has been understood about cf until recently. GET A SECOND OPINION NOW. No one in my family ever had cf same with the mother's family however our daughter has it. BTW alot of people on both sides of our family...

Your doctor is an idiot for making that comment about family history when so little has been understood about cf until recently. GET A SECOND OPINION NOW. No one in my family ever had cf same with the mother's family however our daughter has it. BTW alot of people on both sides of our family...

Its just that Harriet had already corrected my mistake and I didn't appreciate that passive-agressive comment about giving inacurate info and verifying my facts before I post just because I got one little date screwed up. Its like when someone says something snobby about you to someone else but...

Its just that Harriet had already corrected my mistake and I didn't appreciate that passive-agressive comment about giving inacurate info and verifying my facts before I post just because I got one little date screwed up. Its like when someone says something snobby about you to someone else but...

All that I said was that the initial 28 day trial is complete and it is since it began at the beginning of march. I looked at the clinical trials website and saw August, 2013 and thought that was this summer. Sorry it was late and I was tired but I'm sure they'll have some kind of statement on...

All that I said was that the initial 28 day trial is complete and it is since it began at the beginning of march. I looked at the clinical trials website and saw August, 2013 and thought that was this summer. Sorry it was late and I was tired but I'm sure they'll have some kind of statement on...

I think you'll still be able to keep your private insurance plan with the the new healthcare bill. That's why its not exactly socialized healthcare like they have in Canada because the government isn't providing healthcare to everyone they're just insuring that everyone has it. I think it will...

I like medicaid the way it is right now. We get everything prescribed to us and don't pay a single cent for it. Haven't seen a single bill for the 3 week hospital stay from when my daughter was diagnosed last fall. I'm on medicaid now too and all of my prescriptions are free and there is no...

The 28 day VX 661 trial is now complete and the results should be out by this summer. It was a really smart move by the foundation to have a back up to the vx 809.

The 28 day VX 661 trial is now complete and the results should be out by this summer. It was a really smart move by the foundation to have a back up to the vx 809.

It sounds like SSI but I know that they checked our income and not our work history.

It sounds like SSI but I know that they checked our income and not our work history.