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  1. A

    What to do between rounds of tobi?

    sweetdeal: Can you tell me your doctor's reasoning to putting you on continuous tobi. Is resistance not as big of a problem with inhaled antibiotics as with IVs?
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    What to do between rounds of tobi?

    BSG? Whats that stand for. She's 4 and loves carbs even though I'm trying to get her hooked on more fruits and vegetables. I'll give the smoothies a try. Thanks!
  3. A

    What to do between rounds of tobi?

    BSG? Whats that stand for. She's 4 and loves carbs even though I'm trying to get her hooked on more fruits and vegetables. I'll give the smoothies a try. Thanks!
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    backed up!

    Incomudrox: Quoted as saying something and attributed with saying it are two entirely different things. You can't just say that the oldest person must've said it because no one from his time is still around to vouch for him and because people can just say that you said stuff that you didn't...
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    backed up!

    Incomudrox: Quoted as saying something and attributed with saying it are two entirely different things. You can't just say that the oldest person must've said it because no one from his time is still around to vouch for him and because people can just say that you said stuff that you didn't...
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    backed up!

    The saying sounds too modern to have come from Ben Franklin or Mark Twain. Being that the quote is innacurate and not the definition of insanity then Einstein probably didn't say it either. It was probably started by this little known mystery writer you mentioned and then attributed to more...
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    backed up!

    The saying sounds too modern to have come from Ben Franklin or Mark Twain. Being that the quote is innacurate and not the definition of insanity then Einstein probably didn't say it either. It was probably started by this little known mystery writer you mentioned and then attributed to more...
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    The majesty of QUEEN

    My daughter whose four was singing another one bites the dust today so I played the vide of it for her on youtube and she was running in circles and jumping around dancing. Later she asked me if I could sing it like the guy on the video. Hah! Yeah Right. I told her if I could sing like that I...
  9. A

    The majesty of QUEEN

    My daughter whose four was singing another one bites the dust today so I played the vide of it for her on youtube and she was running in circles and jumping around dancing. Later she asked me if I could sing it like the guy on the video. Hah! Yeah Right. I told her if I could sing like that I...
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    backed up!

    Yep. All the other scientists wanted to keep changing the experiments to fit their theory of an ether filled universe and Einstein just changed the theory to fit the results of the experiments. Who says physics has to be all complicated.
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    backed up!

    Yep. All the other scientists wanted to keep changing the experiments to fit their theory of an ether filled universe and Einstein just changed the theory to fit the results of the experiments. Who says physics has to be all complicated.
  12. A

    What to do between rounds of tobi?

    Heard back from the CF nurse today. They don't want to give her anything else because of resistance. We have an appointment with the director of the clinic next week and we're hoping to figure out something then. The director seems to have the authority to be a little bit more agressive with her...
  13. A

    What to do between rounds of tobi?

    Heard back from the CF nurse today. They don't want to give her anything else because of resistance. We have an appointment with the director of the clinic next week and we're hoping to figure out something then. The director seems to have the authority to be a little bit more agressive with her...
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    What to do between rounds of tobi?

    My little D can't go off tobi for more than a week without getting the gunky green goo. We're waiting to try Cayston when it becomes available again but are looking for a solution in the short term. I left a message with the CF nurse today to see if we could start continually giving her bactrim...
  15. A

    What to do between rounds of tobi?

    My little D can't go off tobi for more than a week without getting the gunky green goo. We're waiting to try Cayston when it becomes available again but are looking for a solution in the short term. I left a message with the CF nurse today to see if we could start continually giving her bactrim...
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    New Born Screening Positive

    I didn't know it was posible for a cf gene to cause asthma. I thought the cause of asthma was still largely unknown.
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    New Born Screening Positive

    I didn't know it was posible for a cf gene to cause asthma. I thought the cause of asthma was still largely unknown.
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    Obama & Healthcare

    There is genuine concern that the potential for a government takeover of the healthcare system could happen since the governments plan will be available to people making up to $90,000 a year and if insurance companies can't compete with it then employers will stop offering health benefits and...
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    Alternative Medicine

    It seems like alot of doctors scoff at this stuff too all the while taking huge kickbacks from the pharmaceutical companies. I just browsed the internet real briefly about the glutathione and it looks like there have been some studies done with it relating to CF for the reasons Incomudrox...
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    Alternative Medicine

    We talked to our cf doctor about brocco max and all that stuff to try to reverse bronchiectasis and they told us that stuff is for people with more advanced lung disease who are running out of options. I'm still trying to wrap my head around that one. Yeah lets wait until the bronchiectasis is...
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