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That's exactly what I want to do is spend eternity with a god that gives small children fatal diseases. Suck it up. You only ride this merry-go-round once so make of it what you will and don't have any regrets!

That's exactly what I want to do is spend eternity with a god that gives small children fatal diseases. Suck it up. You only ride this merry-go-round once so make of it what you will and don't have any regrets!

Usually people with cf will have really loose stools without enzymes and constipation is a result of taking too many enzymes. Thats how it was with my DD but maybe other people have the opposite effect. I would say that if he is a good weight and good BMI then he's probably PS and doesn't need...

Smoke 'em if you got 'em! World's going to end next December anyways.

Smoke 'em if you got 'em! World's going to end next December anyways.

Well I'm glad we don't live in sweden cuz pseudo is kicking my daughter's butt right now and I can't wait 'til its time for her to go back on tobi again.

Well I'm glad we don't live in sweden cuz pseudo is kicking my daughter's butt right now and I can't wait 'til its time for her to go back on tobi again.

My daughter was diagnosed after the asthma doctor had her admitted to the ER 3 times in about two weeks with recurrent pneumonia and dangerous O2 saturation levels. At a clinic appointment her mother told him look, I don't think my daughter is a normal healthy child. She coughs constantly...

My daughter was diagnosed after the asthma doctor had her admitted to the ER 3 times in about two weeks with recurrent pneumonia and dangerous O2 saturation levels. At a clinic appointment her mother told him look, I don't think my daughter is a normal healthy child. She coughs constantly...

Ya I think that instead of trying to correct their breathing they just just take fast shallow breaths to compensate for it and it sounds like they're panting sometimes even at rest.

Ya I think that instead of trying to correct their breathing they just just take fast shallow breaths to compensate for it and it sounds like they're panting sometimes even at rest.

Bill: Click on the link below and read the first line under scheduling appointments. Do you have actual experience with this or are you just assuming? http://www.wakehealth.edu/Pulmonary/Patient-Information---Cystic-Fibrosis-Clinic.htm

Bill: Click on the link below and read the first line under scheduling appointments. Do you have actual experience with this or are you just assuming? http://www.wakehealth.edu/Pulmonary/Patient-Information---Cystic-Fibrosis-Clinic.htm

Ya they're PFTs are probably being run into the ground by bacteria thats susceptible to available antibiotics.

Ya they're PFTs are probably being run into the ground by bacteria thats susceptible to available antibiotics.

Ya we want cayston for her but they're not accepting any new patients right now.

Ya we want cayston for her but they're not accepting any new patients right now.

Danika does that real shallow breathing too and her PFTs are over 100% so I've always wondered if it was just an ineffective breathing pattern. I think it might have to do with the hyper inflation that occurs in the lungs of people with cf. Does anyone know what belly breathing is? Her mom...

Danika does that real shallow breathing too and her PFTs are over 100% so I've always wondered if it was just an ineffective breathing pattern. I think it might have to do with the hyper inflation that occurs in the lungs of people with cf. Does anyone know what belly breathing is? Her mom...

We need something to keep her pseudo under control because the tobi's not cutting it. We really want to get her on cayston but I got a feeling they're not going to be meeting their demand anytime soon. I'm thinking about getting her checked in for another round of IVs or maybe get them to cycle...