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    DF508 question

    You know any double deltas that were diagnosed in their 50's because I sure don't? Modifier genes do change specific outcomes for people with the same genotype but I do believe that some aspect of severity is related to the genotype with I and II homozygotes being and severe and people with...
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    DF508 question

    I meant kids that aren't being treated with mucus thinning agents which I'm betting you are. The OP made it sound like her child wasn't being treated for CF lung disease in her original post. As far as the genotype/phenotype correlation I didn't say definitively that he would have a milder form...
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    DF508 question

    I meant kids that aren't being treated with mucus thinning agents which I'm betting you are. The OP made it sound like her child wasn't being treated for CF lung disease in her original post. As far as the genotype/phenotype correlation I didn't say definitively that he would have a milder form...
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    Second Child??

    Ratatosk- Don't you think you should report this mother to CPS. There was an article recently in the news where a mother was convicted of 2nd degree negligent homicide for the death of her three year old daughter with cystic fibrosis. Detectives testified that they found unfilled prescriptions...
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    Second Child??

    Ratatosk- Don't you think you should report this mother to CPS. There was an article recently in the news where a mother was convicted of 2nd degree negligent homicide for the death of her three year old daughter with cystic fibrosis. Detectives testified that they found unfilled prescriptions...
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    DF508 question

    Kids with CF don't usually have runny noses since their mucus is so thick and sticky. If she has a cough you should start her on chest physiotherapy like a vest or acapella. Its not uncommon for the digestive issues to start first with the lung issues to follow. However having one class 5...
  7. A

    DF508 question

    Kids with CF don't usually have runny noses since their mucus is so thick and sticky. If she has a cough you should start her on chest physiotherapy like a vest or acapella. Its not uncommon for the digestive issues to start first with the lung issues to follow. However having one class 5...
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    Coughing judgment at the gym (or any public space)

    Jrbrandyn. We're up in Lynnwood. Where in the Seattle area do you live and where is this school you attend? I've never heard of it before but I sometimes take classes at the UW in Seattle. Cheers!
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    Coughing judgment at the gym (or any public space)

    Jrbrandyn. We're up in Lynnwood. Where in the Seattle area do you live and where is this school you attend? I've never heard of it before but I sometimes take classes at the UW in Seattle. Cheers!
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    Boiling nebs?

    You ever hear of google?
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    Boiling nebs?

    You ever hear of google?
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    Do I Apply

    Our social worker was pretty useless when we tried asking him about benefits. All he said was that there was three ways to apply. By phone, by mail or online. Useless!!
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    Thalassemia and CF partners

    Probably not since they're both autosomal recessive disorders which means a defective gene must be passed down from each parent for the disease to present. Having said that, cases of symptomatic carriers have been reported with both conditions.
  14. A

    Thalassemia and CF partners

    Probably not since they're both autosomal recessive disorders which means a defective gene must be passed down from each parent for the disease to present. Having said that, cases of symptomatic carriers have been reported with both conditions.
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    Off Label Kalydeco

    http://www.omaha.com/article/20120414/LIVEWELL01/704149889/1161
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    Off Label Kalydeco

    http://www.omaha.com/article/20120414/LIVEWELL01/704149889/1161
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    Second Child??

    Its not really about accepting her fate, being honest or just blowing off some steam. Its about being strongly opposed to cf carriers having more children. Strongly opposed to saying, "we already have one kid with cf, god wouldn't be so cruel as to give us another one". Strongly opposed to...
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    Second Child??

    Its not really about accepting her fate, being honest or just blowing off some steam. Its about being strongly opposed to cf carriers having more children. Strongly opposed to saying, "we already have one kid with cf, god wouldn't be so cruel as to give us another one". Strongly opposed to...
  19. A

    Coughing judgment at the gym (or any public space)

    It got really hard to keep taking my daughter to the public swimming pool because the chlorine would cause her to have horrible coughing fits and because she's only four, I was having to carry her all the way to the other side of the pool and hold her over the garbage can so she could do a spit...
  20. A

    Coughing judgment at the gym (or any public space)

    It got really hard to keep taking my daughter to the public swimming pool because the chlorine would cause her to have horrible coughing fits and because she's only four, I was having to carry her all the way to the other side of the pool and hold her over the garbage can so she could do a spit...
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