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i think what Printer said bears repeating ... while the disease Cystic Fibrosis is not contagious, the germs (some of which are highly resistant to antibiotics) and bacteria we culture most certainly are!

i do Pulmozyme twice a day, in the morning and at nite (i've been told most patients are on it once a day?)... treatment regimen as follows: -albuterol neb -HTS -Pulmozyme (i've never heard of waiting half hour to do vest but not to say that's not correct) -vest -inhaled antibiotic

i think this is crazy and, at the very least, shows no compassion for disabling conditions and extenuating circumstances!

i am on it twice daily...

i go to Johns Hopkins Adult CF clinic and have been since 2006 (when i moved to the area) ... i love them! they've never steered me wrong!! the entire team consists of five pulmonologists (one on sabbatical right now), two nurses, nutritionist, physical therapist and social worker. i can't...

bcl0328: i also go to Johns Hopkins! i have seen all the pulmonologists on the team, but Dr Boyle is my absolute favorite!!!

bcl0328, i've always been told usually around 30% FEV1 they start talking transplant...

Wellbutrin = the devil! i was on it many several years ago and it started out working well but eventually i had my first, and one of the worst, panic attack(s) i've ever had!! i didn't know it at the time, didn't even know i was suffering from anxiety/depression, but now having been diagnosed...

"committment ceremony" has been suggested to me numerous times...

is there any chance it might become available for Kindle?

i thought it was a funny story! not that you, or i, or anyone else has Cystic Fibrosis or to those who have Multiple Sclerosis but i've never heard such butchering of CF term :p

i guess i was just under the impression that this is a nasty bacteria that should be treated before it causes lung damage??? i'm sure as with everything else, everyone is different in their reaction to bacteria and treatment...

i am very surprised at all these cases where MAC was not treated at all for long periods of time... i'm kinda new to this bacteria as i had a sputum sample within the last couple months culture MAC. my CF clinic contacted me as soon as they knew about it, to have me submit another sample for...

i'm on 7.5mg (started on 30mg) Prednisone right now for pretty nasty joint pain i had been having. it's worked wonders for the pain, but it's not ideal as a long-term treatment due to making blood sugars w/ CFRD even worse! i'm on that low dose for another week then we'll see what happens with...

i have several questions, but most importantly to me right now: 1) would a home spirometry device be covered by insurances? 2) how does the data get to my doctor and is it transferred in a secure fashion so that my PFTs are not ultimately visible on the world wide web? 3) would Medrise, or who...

i know it's time: general loss of appetite (over a week's time or so) get "winded" easily (to even walk across the room) nap a lot during day and consistently sleep in 'til late morning increased lack of energy (to even want to do anything or go to work, and i only work one day per week)...

i'm 34 years old and i just went to a Rheumatologist in the beginnings of trying to find out where my joint pain is coming from. i used to get it once a month or so, it would affect my neck, wrists, knuckles, hips and knees and last about a week (i would just take Motrin to alleviate the pain)...

i am absolutely a fan! can't wait for new season ... how about "American Horror Story" ??? another favorite of mine!

hey guys and gals! i just heard Jonathan and Frank have been contacted by Novartis!!! whoop whoop :D

i'm 34 years old and my FEV1 is around 45% :)