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Ditto CFPAF, check www.cfhelp.org Has lots of stuff for RX assistance, if you can hold out for 6 months you might be better off waiting for PCIP...also on the website I mentioned and it's good coverage.

I would think John Hopkins in Baltimore would be your best best...I use the University of Virginia (Charlottesville) - I have been there my whole life from peds to current...The University brought on two new doctors a year and a half ago....they are the best I have ever had...I probably get some...

My family has always had a dog...and have had no problems. I also competively show horses and do well with that...with the exception of the dust and hay sometimes bothering me in our barn.

I was a lot like you...I didn't need treatments until I was about 16...I fought it. Then realized how bad I felt if I didn't do them...that's why I do them now, if I miss a treatment, I will feel God awful....I can't skip because I will feel horrible. Routine is good...I get up at the same...

Bill, you are a complete ass. I admittedly do not read the boards very much, but every time I do, and I see a comment of yours, it always possesses a condescending undertone. I think you are one of those old men that reminds us of a crazy uncle who thinks he knows everything or has had every...

Does anyone else experince body ache...almost constantly with their CF? My legs, knees, and shoulders ache all day. A gluten free diet does seem to help, but I hate it. Has any one's doc given meds for this?

I'm 27, male and my clubbing has pretty much stayed the same my whole life...hands looks very similar to the photo on yahoo article. I've never had a "non-medical" person notice it. And Bill is correct about clubbing not being relegated to CF only. I attribute mine being less sever to higher...

Do you mind my asking how much your policy costs? Did you buy directly throuhg a Mutual of Omaha or a broker? And it picks up the tab for what medicare doesn't pay? Also isn't there a pretty high deductable per hospital admission with medicare? Does your policy help wit that? Thanks and...

Question for those of you on SSDI and Medicare. Did you buy a supplement policy to help with helath care expenses? I am about to go on SSDI and Medicare and am a little worried, medicare doesn't look like the best coverage out there. thanks.

Thank you all..l.I did not think about the option of override. I will call them and ask. Spoke with them today, and the answer was no that the co-pay for Cayston would not count towards my OOPM.

I am in open season for my insurance and thinking about switching plans because of cost. Here is my question: The plan has an out of pocket max of $5000.00. However the plan brocure states copays for specialty drugs not filled through the plan specialty pharmacy do not count towards the out...

Oops - meant to ask also, how did you prove the failed work attempt? I have my Earnings and Leave statements, wonder if that would help.

Thanks so much. I haven't worked since June 11, have been on paid leave....hopefully can get some backpay....will contact the firm and see what they say. Did you do your SSA interview on the phone or in person and what types of things did they ask?

Newbie here... I am in the process of applying for SSDI - I am lucky enough to have the help of Beth Sufian's firm. I meet 2 out of the 3 criteria aside from having CFRD and having my 3rd sinus surgery this past April. For those of you all on SSDI, what / how did you generate income while...