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  1. S

    Summer Camp and CF

    I attended a church camp every summer for about 5 years, and once I was old enough joined staff at the same camp for another 2 years (I'm actually one of the only "original" people from that camp now...). Anywho, my experiences have been great. Granted, I have very mild CF, but when I was little...
  2. S

    Summer Camp and CF

    I attended a church camp every summer for about 5 years, and once I was old enough joined staff at the same camp for another 2 years (I'm actually one of the only "original" people from that camp now...). Anywho, my experiences have been great. Granted, I have very mild CF, but when I was little...
  3. S

    Summer Camp and CF

    I attended a church camp every summer for about 5 years, and once I was old enough joined staff at the same camp for another 2 years (I'm actually one of the only "original" people from that camp now...). Anywho, my experiences have been great. Granted, I have very mild CF, but when I was little...
  4. S

    Judging Hurts

    Wow, I forget how unbelievable horrible young people can be, and I'm going to graduate tomorrow from highscool. Even when I was in public school, and a public highschool for 9th-10th grade I never heard anything as malicious as you are discribing. Maybe it's because they're freshman.... freshman...
  5. S

    Judging Hurts

    Wow, I forget how unbelievable horrible young people can be, and I'm going to graduate tomorrow from highscool. Even when I was in public school, and a public highschool for 9th-10th grade I never heard anything as malicious as you are discribing. Maybe it's because they're freshman.... freshman...
  6. S

    Judging Hurts

    Wow, I forget how unbelievable horrible young people can be, and I'm going to graduate tomorrow from highscool. Even when I was in public school, and a public highschool for 9th-10th grade I never heard anything as malicious as you are discribing. Maybe it's because they're freshman.... freshman...
  7. S

    CoughAssist machine?

    I just visited the doctor yesterday and to see how using this machine has helped over the past few weeks. In Jnauary I was at about 86% function, royally screwed up, then on 4/7/11 I was around 76%. Yesterday I only bumped up to 79%, even after seriously jacking up my treatments and using this...
  8. S

    Who are you in a nut shell

    Name: Sara Age: 18 Location: Arizona DX at birth, meconium ileus (eeew) Lung function baseline: usually mid 90's, but sucking horrible this past year... high 70's low 80's Height: 5'1 Weight: 119 (boooooo) I looooove to cook I'm half Ecuadorian I refuse to let CF my part of my identity. No, I...
  9. S

    CoughAssist machine?

    Last week my dad brought home a new piece of equipment (for me at least) to try out. It's called CoughAssist by Respironics (or the Coughalator, but I think that's just a funny name my dad likes to use). What it does is push and pull air out of your lungs using different pressues, similar to the...
  10. S

    using oxygen while exercising

    I've wondered the same thing actually. I figured, hey, my muscles need O2 when working out, here's some extra! I became a fan of doing the stationary bike in the morning with my Tobi becuase my breathing ahrder helped get it down in there (but that was just on a normal neb, not oxygen) I've...
  11. S

    using oxygen while exercising

    I've wondered the same thing actually. I figured, hey, my muscles need O2 when working out, here's some extra! I became a fan of doing the stationary bike in the morning with my Tobi becuase my breathing ahrder helped get it down in there (but that was just on a normal neb, not oxygen) I've...
  12. S

    using oxygen while exercising

    I've wondered the same thing actually. I figured, hey, my muscles need O2 when working out, here's some extra! <br /> <br />I became a fan of doing the stationary bike in the morning with my Tobi becuase my breathing ahrder helped get it down in there (but that was just on a normal neb, not...
  13. S

    How...?!? This is really overwhelming.

    This wont answer your question, but I just thought I'd comment. It would be great if you could use this situation as a learning oportunity for your daughter. You know, start to show her the ropes and teach her a little about home IVs and whatnot (though not too sure how much a young girl would...
  14. S

    How...?!? This is really overwhelming.

    This wont answer your question, but I just thought I'd comment. It would be great if you could use this situation as a learning oportunity for your daughter. You know, start to show her the ropes and teach her a little about home IVs and whatnot (though not too sure how much a young girl would...
  15. S

    How...?!? This is really overwhelming.

    This wont answer your question, but I just thought I'd comment. <br /> <br />It would be great if you could use this situation as a learning oportunity for your daughter. You know, start to show her the ropes and teach her a little about home IVs and whatnot (though not too sure how much a young...
  16. S

    Not taking enzymes?

    When I was a kid God forbide I missed my enzyme. I used to get those horrid stomach cramps for hours all the time and man were they brutal. As I got older I got better about taking my enzyme and whatnot, but I've always wodered something. What would really happen if I didn't take them? For...
  17. S

    Not taking enzymes?

    When I was a kid God forbide I missed my enzyme. I used to get those horrid stomach cramps for hours all the time and man were they brutal. As I got older I got better about taking my enzyme and whatnot, but I've always wodered something. What would really happen if I didn't take them? For...
  18. S

    Not taking enzymes?

    When I was a kid God forbide I missed my enzyme. I used to get those horrid stomach cramps for hours all the time and man were they brutal. As I got older I got better about taking my enzyme and whatnot, but I've always wodered something. <br /> <br />What would really happen if I didn't take...
  19. S

    Swallowing Creon pills

    I've always just taken mine whenever (was on Pancrease MT10, now Creon). Sometimes even hours after I'd eat due to forgetting. Though the last time I spoke to a nutritionist at the clinic said it is best to take them 15 mins or so before eating. She said it was similar to "unlocking doors." The...
  20. S

    Swallowing Creon pills

    I've always just taken mine whenever (was on Pancrease MT10, now Creon). Sometimes even hours after I'd eat due to forgetting. Though the last time I spoke to a nutritionist at the clinic said it is best to take them 15 mins or so before eating. She said it was similar to "unlocking doors." The...
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