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  1. S

    You are a patient. You have rights. Speak up.

    Exactly Lilmac. It's so easy to be passive and let them put the drugs in you without really thinking about it. Granted, being in the hospital can be very disorientating. It takes me a good 2 days to figure out who's who and what my schedule will look like. Next time I will focus on being more...
  2. S

    You are a patient. You have rights. Speak up.

    Exactly Lilmac. It's so easy to be passive and let them put the drugs in you without really thinking about it. Granted, being in the hospital can be very disorientating. It takes me a good 2 days to figure out who's who and what my schedule will look like. Next time I will focus on being more...
  3. S

    You are a patient. You have rights. Speak up.

    Exactly Lilmac. It's so easy to be passive and let them put the drugs in you without really thinking about it. Granted, being in the hospital can be very disorientating. It takes me a good 2 days to figure out who's who and what my schedule will look like. Next time I will focus on being more...
  4. S

    Coughing!

    I have always coughed when I needed too, and people around me learned to deal with it. I told them flat out that coughing is essential and say nicely that I'm not sick or anything and to not worry. If it got really bad then I would step outside for a moment, or go to the bathroom.
  5. S

    Coughing!

    I have always coughed when I needed too, and people around me learned to deal with it. I told them flat out that coughing is essential and say nicely that I'm not sick or anything and to not worry. If it got really bad then I would step outside for a moment, or go to the bathroom.
  6. S

    Coughing!

    I have always coughed when I needed too, and people around me learned to deal with it. I told them flat out that coughing is essential and say nicely that I'm not sick or anything and to not worry. If it got really bad then I would step outside for a moment, or go to the bathroom.
  7. S

    You are a patient. You have rights. Speak up.

    I wanted to write a post about something that happened to me on my last hospital stay, and why I think young people with CF, especially those transitioning into the adult world, should be aware of.<br>Long story short, the Sr. resident assigned to me misdiagnosed me with CFRD. What happened was...
  8. S

    You are a patient. You have rights. Speak up.

    I wanted to write a post about something that happened to me on my last hospital stay, and why I think young people with CF, especially those transitioning into the adult world, should be aware of.<br>Long story short, the Sr. resident assigned to me misdiagnosed me with CFRD. What happened was...
  9. S

    You are a patient. You have rights. Speak up.

    I wanted to write a post about something that happened to me on my last hospital stay, and why I think young people with CF, especially those transitioning into the adult world, should be aware of.<br>Long story short, the Sr. resident assigned to me misdiagnosed me with CFRD. What happened was...
  10. S

    creon help

    personally, I've always followed a rule my parents told me (who knows where they got the info): 1 enzyme for every 100 calories, give or take. Extra fatty foods may require an extra enzyme or so. I don't take enzyme with fruit, vegetables, juice, tea, soda, fat-free candy etc I've been dosing...
  11. S

    creon help

    personally, I've always followed a rule my parents told me (who knows where they got the info): 1 enzyme for every 100 calories, give or take. Extra fatty foods may require an extra enzyme or so. I don't take enzyme with fruit, vegetables, juice, tea, soda, fat-free candy etc I've been dosing...
  12. S

    creon help

    personally, I've always followed a rule my parents told me (who knows where they got the info): 1 enzyme for every 100 calories, give or take. Extra fatty foods may require an extra enzyme or so. I don't take enzyme with fruit, vegetables, juice, tea, soda, fat-free candy etc I've been dosing...
  13. S

    creon help

    personally, I've always followed a rule my parents told me (who knows where they got the info): 1 enzyme for every 100 calories, give or take. Extra fatty foods may require an extra enzyme or so. I don't take enzyme with fruit, vegetables, juice, tea, soda, fat-free candy etc I've been dosing...
  14. S

    creon help

    personally, I've always followed a rule my parents told me (who knows where they got the info): 1 enzyme for every 100 calories, give or take. Extra fatty foods may require an extra enzyme or so. I don't take enzyme with fruit, vegetables, juice, tea, soda, fat-free candy etc I've been dosing...
  15. S

    creon help

    personally, I've always followed a rule my parents told me (who knows where they got the info): 1 enzyme for every 100 calories, give or take. Extra fatty foods may require an extra enzyme or so. I don't take enzyme with fruit, vegetables, juice, tea, soda, fat-free candy etc I've been dosing...
  16. S

    Creon cost

    I have Cigna, so I feel your pain. <br>We've had terrible trouble with them regarding almost everything! (Creon, Dornase, the friggin hospital, Cayston was a nightmare). to make it worse, the woman who gives the A-ok for my meds/procedures doesn't even have any type of medical degree.... <br>...
  17. S

    Creon cost

    I have Cigna, so I feel your pain. <br>We've had terrible trouble with them regarding almost everything! (Creon, Dornase, the friggin hospital, Cayston was a nightmare). to make it worse, the woman who gives the A-ok for my meds/procedures doesn't even have any type of medical degree.... <br>...
  18. S

    Creon cost

    I have Cigna, so I feel your pain. <br>We've had terrible trouble with them regarding almost everything! (Creon, Dornase, the friggin hospital, Cayston was a nightmare). to make it worse, the woman who gives the A-ok for my meds/procedures doesn't even have any type of medical degree.... <br>...
  19. S

    Urgent question about Cayston/Altera neb

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i> I'm not in the medical field but for what it's worth - I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two...
  20. S

    Urgent question about Cayston/Altera neb

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>stephen</b></i> I'm not in the medical field but for what it's worth - I've been using Cayston for over four years. Once a day I soak my Altera and two Pari LC Plus nebulizers in boiling water for a few minutes. The other two...
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