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  1. J

    Zosyn and Vanc people please read

    yup! redman's syndrome. the first time i got it i had been deeply asleep and i thought it was a nightmare. felt like a burning and itching under my skin, all over. benadryl 30 minutes before infusion solves the problem, presto!
  2. J

    Zosyn and Vanc people please read

    yup! redman's syndrome. the first time i got it i had been deeply asleep and i thought it was a nightmare. felt like a burning and itching under my skin, all over. benadryl 30 minutes before infusion solves the problem, presto!
  3. J

    Late Diagnosis

    I was diagnosed at 16 and will be 24 in April. <img src="i/expressions/face-icon-small-happy.gif" border="0"> I was treated as having asthma and allergies until I heard about CF and I asked my doctor if I might have it since I had a lot of symptoms that didn't fit with asthma and allergies (I'm...
  4. J

    Late Diagnosis

    I was diagnosed at 16 and will be 24 in April. <img src="i/expressions/face-icon-small-happy.gif" border="0"> I was treated as having asthma and allergies until I heard about CF and I asked my doctor if I might have it since I had a lot of symptoms that didn't fit with asthma and allergies (I'm...
  5. J

    tiny arms

    weight training!!!
  6. J

    tiny arms

    weight training!!!
  7. J

    Anyone have a good workout plan that has helped you gain muscle back in your body?..as well as brought you Fev %up?

    Anyone have a good workout plan that has helped you gain muscle back in your body?..as well as brought you Fev %up? swimming. weight training. obviously, i don't know what you are capable of or not, but i signed up at the gym a few months back and it has helped me a ton! i've now got little...
  8. J

    Anyone have a good workout plan that has helped you gain muscle back in your body?..as well as brought you Fev %up?

    Anyone have a good workout plan that has helped you gain muscle back in your body?..as well as brought you Fev %up? swimming. weight training. obviously, i don't know what you are capable of or not, but i signed up at the gym a few months back and it has helped me a ton! i've now got little...
  9. J

    Travel Compressors and Airway Clearance Devices

    hi there! i made a week-long camping trip to yosemite about two years ago. i bought a small-ish generator and took that along so that i could do the vest in my tent <img src="i/expressions/face-icon-small-smile.gif" border="0"> hehe. a lot of people with big campers bring along generators for...
  10. J

    Travel Compressors and Airway Clearance Devices

    hi there! i made a week-long camping trip to yosemite about two years ago. i bought a small-ish generator and took that along so that i could do the vest in my tent <img src="i/expressions/face-icon-small-smile.gif" border="0"> hehe. a lot of people with big campers bring along generators for...
  11. J

    has anyone else gotten mixed up while in the hospital

    i have on a couple occasions had a doctor or nurse or some other medical professional come in and ask "are you ___", and they'd have the wrong person. seems simple enough to read the name posted on the door, but i guess not enough for everyone. i haven't experienced any serious medical errors...
  12. J

    has anyone else gotten mixed up while in the hospital

    i have on a couple occasions had a doctor or nurse or some other medical professional come in and ask "are you ___", and they'd have the wrong person. seems simple enough to read the name posted on the door, but i guess not enough for everyone. i haven't experienced any serious medical errors...
  13. J

    ESPN and Inifiti charity event! VOTE!

    it says you can vote each day.
  14. J

    ESPN and Inifiti charity event! VOTE!

    it says you can vote each day.
  15. J

    I wonder something

    i've had a similar experience. a friend of mine gave me the number of a guy with cf who said he was willing to talk. we emailed for a while, but eventually he began to complain of the effort it took. he suggested meeting up some time since we live very close by, but i haven't heard from him...
  16. J

    I wonder something

    i've had a similar experience. a friend of mine gave me the number of a guy with cf who said he was willing to talk. we emailed for a while, but eventually he began to complain of the effort it took. he suggested meeting up some time since we live very close by, but i haven't heard from him...
  17. J

    Trouble keeping/making friends

    hi there. i'm sorry to hear you are lonely. i know how it can be, though i'm experiencing that loneliness now at 23 rather than at your age. i was dx'd just before my senior year of high school, and i didn't discuss it with many folks (denial!). i was sick and all, but didn't miss much school...
  18. J

    Trouble keeping/making friends

    hi there. i'm sorry to hear you are lonely. i know how it can be, though i'm experiencing that loneliness now at 23 rather than at your age. i was dx'd just before my senior year of high school, and i didn't discuss it with many folks (denial!). i was sick and all, but didn't miss much school...
  19. J

    I'd love to get your expert opinions :)

    hm... as someone who has not gotten as much support from family as i needed since diagnosis, i will say... listening has got to be the best thing. making the effort to hear what your loved one has to say shows that you care about them enough to refrain from talking about your own (sometimes...
  20. J

    I'd love to get your expert opinions :)

    hm... as someone who has not gotten as much support from family as i needed since diagnosis, i will say... listening has got to be the best thing. making the effort to hear what your loved one has to say shows that you care about them enough to refrain from talking about your own (sometimes...
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