Search results

  1. J

    CF effects all aspects of your life?

    I agree with what some others have said about CF taking over your mentality; in other words letting CF "define you." Obviously CF is a part of you and determines much of what you do, but maybe your friend perceives that you are allowing it to keep you down in certain (perhaps many) ways and...
  2. J

    CF effects all aspects of your life?

    I agree with what some others have said about CF taking over your mentality; in other words letting CF "define you." Obviously CF is a part of you and determines much of what you do, but maybe your friend perceives that you are allowing it to keep you down in certain (perhaps many) ways and...
  3. J

    Looking for some cystic fibosis friends

    hello! you can add me on facebook if you can find me (i don't know how to post a working link to my page on here) - Deirdre Peckenham - or PM me, or email me at d.peckenham@yahoo.com! i was diagnosed at 16, and i'm 23 now and still looking to make friends with other cfers, as i'm still learning...
  4. J

    Looking for some cystic fibosis friends

    hello! you can add me on facebook if you can find me (i don't know how to post a working link to my page on here) - Deirdre Peckenham - or PM me, or email me at d.peckenham@yahoo.com! i was diagnosed at 16, and i'm 23 now and still looking to make friends with other cfers, as i'm still learning...
  5. J

    Looking for some cystic fibosis friends

    hello! you can add me on facebook if you can find me (i don't know how to post a working link to my page on here) - Deirdre Peckenham - or PM me, or email me at d.peckenham@yahoo.com! i was diagnosed at 16, and i'm 23 now and still looking to make friends with other cfers, as i'm still learning...
  6. J

    Gastrointestional

    lots of fluids! i find the more water i drink, the less i have to worry about getting constipated! if that doesn't help, i'll take a dose of miralax. hope you find what works!
  7. J

    Gastrointestional

    lots of fluids! i find the more water i drink, the less i have to worry about getting constipated! if that doesn't help, i'll take a dose of miralax. hope you find what works!
  8. J

    Gastrointestional

    lots of fluids! i find the more water i drink, the less i have to worry about getting constipated! if that doesn't help, i'll take a dose of miralax. hope you find what works!
  9. J

    "What's CF??"

    I was diagnosed 6 years ago but even now that I've gotten comfortable talking about CF, I still don't have a comfortable way of describing it.  It feels so unnatural for me to describe the illness because I feel like I'm using other people's words (namely, doctors'), and it comes out as a bunch...
  10. J

    "What's CF??"

    I was diagnosed 6 years ago but even now that I've gotten comfortable talking about CF, I still don't have a comfortable way of describing it. It feels so unnatural for me to describe the illness because I feel like I'm using other people's words (namely, doctors'), and it comes out as a bunch...
  11. J

    "What's CF??"

    I was diagnosed 6 years ago but even now that I've gotten comfortable talking about CF, I still don't have a comfortable way of describing it. It feels so unnatural for me to describe the illness because I feel like I'm using other people's words (namely, doctors'), and it comes out as a bunch...
  12. J

    top five

    1. not feeling reciprocated as far as listening to problems! 2. not feeling understood by my family, or others for that matter. 3. ignorant, cruel people. 4. happy, goofy doctors. 5. incredibly negative people who only complain and never seem content about ANYTHING!!!!
  13. J

    Help With Family Life and Self Motivation?

    Hm... I can tell you that my mom was always on my case when I was first diagnosed, and eventually (after getting angry all the time) I asked her - maybe not so kindly - to stop nagging me because I wanted to handle it myself. That's what I got, alright! Since then, I've been handling my...
  14. J

    Help With Family Life and Self Motivation?

    Hm... I can tell you that my mom was always on my case when I was first diagnosed, and eventually (after getting angry all the time) I asked her - maybe not so kindly - to stop nagging me because I wanted to handle it myself. That's what I got, alright! Since then, I've been handling my...
  15. J

    Help With Family Life and Self Motivation?

    Hm... I can tell you that my mom was always on my case when I was first diagnosed, and eventually (after getting angry all the time) I asked her - maybe not so kindly - to stop nagging me because I wanted to handle it myself. That's what I got, alright! Since then, I've been handling my...
  16. J

    Traveling

    Hello! Just a few months ago I traveled to the East Coast for 3 weeks. I took my vest, regular neb, and cayston neb with me. On the first flight, I did take my vest, but I got comments from just about every security agent and flight attendant. On the rest of the flights, I checked the vest to...
  17. J

    Traveling

    Hello! Just a few months ago I traveled to the East Coast for 3 weeks. I took my vest, regular neb, and cayston neb with me. On the first flight, I did take my vest, but I got comments from just about every security agent and flight attendant. On the rest of the flights, I checked the vest to...
  18. J

    Traveling

    Hello! Just a few months ago I traveled to the East Coast for 3 weeks. I took my vest, regular neb, and cayston neb with me. On the first flight, I did take my vest, but I got comments from just about every security agent and flight attendant. On the rest of the flights, I checked the vest to...
  19. J

    Who are you in a nut shell

    seems this was re-posted a few months ago; i'm not on this site all too often. anywho... My name is Deirdre. Can you guess my gender?? I'm 23, 5'0 and about 100lbs. Diagnosed at 16 and still a bit lost and lonely (no CF friends). DF508 and unkown. Apparently a pretty mild case from what I've...
  20. J

    CF Healthcare supplies to donate

    I should add that there are lists of accepted supplies and drop-off sites located in New York, all under the "How Can I Help?" tab.
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