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Wow that is great. Its so uplifting to here of the CFers with no symptoms, it gives hope to all newly diagnosed

Wow that is great. Its so uplifting to here of the CFers with no symptoms, it gives hope to all newly diagnosed

June 22, 2010 Jaden had his next CF Team meeting and its not good. His lungs seem to be doing well however he only gained 2 oz. If he does not gain a significant amount of weight in the next 2 weeks they are going to put a tube in his stomach for us to put the enzymes in. Has anyone else gone...

June 22, 2010 Jaden had his next CF Team meeting and its not good. His lungs seem to be doing well however he only gained 2 oz. If he does not gain a significant amount of weight in the next 2 weeks they are going to put a tube in his stomach for us to put the enzymes in. Has anyone else gone...

June 22, 2010 Jaden had his next CF Team meeting and its not good. His lungs seem to be doing well however he only gained 2 oz. If he does not gain a significant amount of weight in the next 2 weeks they are going to put a tube in his stomach for us to put the enzymes in. Has anyone else gone...

Not sure if anyone suggested this but I just found it on a link and thought of you: Cystic fibrosis is the most common cause of pancreatic insufficiency in children, but a condition called Shwachman-Diamond Syndrome (SDS) is the second most common cause.

Not sure if anyone suggested this but I just found it on a link and thought of you: Cystic fibrosis is the most common cause of pancreatic insufficiency in children, but a condition called Shwachman-Diamond Syndrome (SDS) is the second most common cause.

Not sure if anyone suggested this but I just found it on a link and thought of you: <br /> <br />Cystic fibrosis is the most common cause of pancreatic insufficiency in children, but a condition called Shwachman-Diamond Syndrome (SDS) is the second most common cause.

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Just wondering if anyone has tried this yet or what the difference is between it and creon?: The CF Foundation has learned that the pancreatic enzyme product Pancrease will be available in limited supply at pharmacies around the country until an updated formula called PancreazeTM is made...

Just wondering if anyone has tried this yet or what the difference is between it and creon?: The CF Foundation has learned that the pancreatic enzyme product Pancrease will be available in limited supply at pharmacies around the country until an updated formula called PancreazeTM is made...

Just wondering if anyone has tried this yet or what the difference is between it and creon?: <br />The CF Foundation has learned that the pancreatic enzyme product Pancrease will be available in limited supply at pharmacies around the country until an updated formula called PancreazeTM is made...

I guess I will stop the chocolate skim milk, he seems to not mind it too much in juice - Will absolutely not take them in any kind of sauce and now I'm a bit concerned because even in the juice it takes him sometimes 20 minutes to get them down. He is only 2 so I don't think there is a way we...

I guess I will stop the chocolate skim milk, he seems to not mind it too much in juice - Will absolutely not take them in any kind of sauce and now I'm a bit concerned because even in the juice it takes him sometimes 20 minutes to get them down. He is only 2 so I don't think there is a way we...

I guess I will stop the chocolate skim milk, he seems to not mind it too much in juice - Will absolutely not take them in any kind of sauce and now I'm a bit concerned because even in the juice it takes him sometimes 20 minutes to get them down. He is only 2 so I don't think there is a way we...

My grandson was missed dx for almost a year. He always had a cold, runny noise, small etc. Every time my dtr would take him the dr's it was the same thing - he has childhood asthma, he has bronchitis, he has a cold, bring him home and put him on the nebulizer. Oh another; he's just short in...

My grandson was missed dx for almost a year. He always had a cold, runny noise, small etc. Every time my dtr would take him the dr's it was the same thing - he has childhood asthma, he has bronchitis, he has a cold, bring him home and put him on the nebulizer. Oh another; he's just short in...

My grandson was missed dx for almost a year. He always had a cold, runny noise, small etc. Every time my dtr would take him the dr's it was the same thing - he has childhood asthma, he has bronchitis, he has a cold, bring him home and put him on the nebulizer. Oh another; he's just short in...