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  1. M

    post transplant side effects

    My son was transplanted six months ago and has had a flushed/red face for several months now. His dr. took him off bactrim to see if that was the cause. If it doesn't go away, he will send him to a dermatologist. With all the meds he's on, I can't see how that will help.Has anyone else...
  2. M

    post transplant side effects

    My son was transplanted six months ago and has had a flushed/red face for several months now. His dr. took him off bactrim to see if that was the cause. If it doesn't go away, he will send him to a dermatologist. With all the meds he's on, I can't see how that will help.Has anyone else...
  3. M

    post transplant side effects

    My son was transplanted six months ago and has had a flushed/red face for several months now. His dr. took him off bactrim to see if that was the cause. If it doesn't go away, he will send him to a dermatologist. With all the meds he's on, I can't see how that will help.Has anyone else...
  4. M

    Major disaster in the Northeast, USA

    Tobi and Pulmozyme have to stay refrigerated. Don't know about Cayston. joan
  5. M

    Major disaster in the Northeast, USA

    Tobi and Pulmozyme have to stay refrigerated. Don't know about Cayston. joan
  6. M

    Major disaster in the Northeast, USA

    Tobi and Pulmozyme have to stay refrigerated. Don't know about Cayston. <br /> <br />joan
  7. M

    Sports Organization Discriminating against my daughter w/CF

    Bravo! Continue to be an advocate for your daughter. Your experience though is exactly why we never discussed our son's CF with neighbors, school friends, or acquaintances. When my son was very young, (he is 21 now) I had the opportunity to interview a man in his 30s who had CF. He played high...
  8. M

    Sports Organization Discriminating against my daughter w/CF

    Bravo! Continue to be an advocate for your daughter. Your experience though is exactly why we never discussed our son's CF with neighbors, school friends, or acquaintances. When my son was very young, (he is 21 now) I had the opportunity to interview a man in his 30s who had CF. He played high...
  9. M

    Sports Organization Discriminating against my daughter w/CF

    Bravo! Continue to be an advocate for your daughter. Your experience though is exactly why we never discussed our son's CF with neighbors, school friends, or acquaintances. When my son was very young, (he is 21 now) I had the opportunity to interview a man in his 30s who had CF. He played high...
  10. M

    New Hospital = dissapointment

    Every hospital should have a patient advocate on staff. I would definitely contact someone. You have very legitimate complaints. joan mom to son with CF
  11. M

    New Hospital = dissapointment

    Every hospital should have a patient advocate on staff. I would definitely contact someone. You have very legitimate complaints. joan mom to son with CF
  12. M

    New Hospital = dissapointment

    Every hospital should have a patient advocate on staff. I would definitely contact someone. You have very legitimate complaints. <br /> <br />joan <br />mom to son with CF
  13. M

    Traveling by plane with medication?

    We have traveled a lot with medication as well as medical equipment. It helps to have a note from the doctor. It will make the TSA process a little faster. (My son was always pulled for extra screening.) The airline my husband words for recommends and I think requires a doctor's note. Also, do...
  14. M

    Traveling by plane with medication?

    We have traveled a lot with medication as well as medical equipment. It helps to have a note from the doctor. It will make the TSA process a little faster. (My son was always pulled for extra screening.) The airline my husband words for recommends and I think requires a doctor's note. Also, do...
  15. M

    Traveling by plane with medication?

    We have traveled a lot with medication as well as medical equipment. It helps to have a note from the doctor. It will make the TSA process a little faster. (My son was always pulled for extra screening.) The airline my husband words for recommends and I think requires a doctor's note. Also, do...
  16. M

    Traveling by plane with medication?

    We have traveled a lot with medication as well as medical equipment. It helps to have a note from the doctor. It will make the TSA process a little faster. (My son was always pulled for extra screening.) The airline my husband words for recommends and I think requires a doctor's note. Also, do...
  17. M

    Traveling by plane with medication?

    We have traveled a lot with medication as well as medical equipment. It helps to have a note from the doctor. It will make the TSA process a little faster. (My son was always pulled for extra screening.) The airline my husband words for recommends and I think requires a doctor's note. Also, do...
  18. M

    Traveling by plane with medication?

    We have traveled a lot with medication as well as medical equipment. It helps to have a note from the doctor. It will make the TSA process a little faster. (My son was always pulled for extra screening.) The airline my husband words for recommends and I think requires a doctor's note. Also, do...
  19. M

    Starting my life at 21!

    Jordan, My son is 21-years-old and just received a double lung transplant. He is doing well and was on the vent for about 24 hours--that's all. He was not in the hospital when he got the call. In fact, he's only been hospitalized 3 times. From what I've seen so far, the operation is worth it. If...
  20. M

    Starting my life at 21!

    Jordan, My son is 21-years-old and just received a double lung transplant. He is doing well and was on the vent for about 24 hours--that's all. He was not in the hospital when he got the call. In fact, he's only been hospitalized 3 times. From what I've seen so far, the operation is worth it. If...
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