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  1. I

    looking for friends with CF

    Heya ladybuggirl! Good to have you here! I'm 40, diagnosed with CF at 3 months of age. Been in and out of the hospital a lot until I hit 18 and then have done all my care at home. Thankfully I have a very supportive husband, we're coming up on our 23rd year together! I have two...
  2. I

    Happy with myself

    nocode, two years ago it dropped pretty low (40's) and I was getting winded going up a single flight of stairs. So I started RABIDLY working on fitness.....so far I've raised my FEV to a high of 65%. Right now I would guess its at about 60%. I've had some knee, shin splint, gout, and other...
  3. I

    Happy with myself

    nocode, two years ago it dropped pretty low (40's) and I was getting winded going up a single flight of stairs. So I started RABIDLY working on fitness.....so far I've raised my FEV to a high of 65%. Right now I would guess its at about 60%. I've had some knee, shin splint, gout, and other...
  4. I

    Happy with myself

    Did the great strides walk today, only I ran the whole darn thing. A lot of it is steep uphill and then steep downhill, which was challenging, but I made it and was the first person back (and yes, other people were running it too). Not so much that I won, but the CF clearly LOST..........and...
  5. I

    Happy with myself

    Did the great strides walk today, only I ran the whole darn thing. A lot of it is steep uphill and then steep downhill, which was challenging, but I made it and was the first person back (and yes, other people were running it too). Not so much that I won, but the CF clearly LOST..........and...
  6. I

    Do You Travel to a CF Center in Another State to Get Good Care?

    I live in SW Virginia and go to UNC chapel hill for care.
  7. I

    Do You Travel to a CF Center in Another State to Get Good Care?

    I live in SW Virginia and go to UNC chapel hill for care.
  8. I

    Low iron levels

    momtohazel, the following are high in iron. Eating these in conjunction with foods high in vitamin C helps the iron absorbtion. Red meat, egg yolks, collard greens, prunes, raisins, iron-enriched cereal and breads, oysters, clams, scapplops, lentils, chick peas, soybeans, liver, artichoke...
  9. I

    Low iron levels

    momtohazel, the following are high in iron. Eating these in conjunction with foods high in vitamin C helps the iron absorbtion. Red meat, egg yolks, collard greens, prunes, raisins, iron-enriched cereal and breads, oysters, clams, scapplops, lentils, chick peas, soybeans, liver, artichoke...
  10. I

    Anyone Fly recently?

    They will allow small amount, especially medicine. I have never had a problem. They did not ask to see scripts, although most of my meds were in obvious script boxes or vials.
  11. I

    Anyone Fly recently?

    They will allow small amount, especially medicine. I have never had a problem. They did not ask to see scripts, although most of my meds were in obvious script boxes or vials.
  12. I

    What can't you do after a transplant?

    NO SUSHI!!!!!!!!!!! awwwww, sheeeeeeeeeeeeeeeeeeit.....
  13. I

    What can't you do after a transplant?

    NO SUSHI!!!!!!!!!!! awwwww, sheeeeeeeeeeeeeeeeeeit.....
  14. I

    Can't quit coughing

    As a general rule, people with CF dont want to take meds that will stop their coughing. That being said, coughing to exhaustion is really counter-productive. I take tussin CF quite a bit and hydrocodone when I start reaching my coughing tolerance limit (which is when I start to snap ribs)...
  15. I

    Can't quit coughing

    As a general rule, people with CF dont want to take meds that will stop their coughing. That being said, coughing to exhaustion is really counter-productive. I take tussin CF quite a bit and hydrocodone when I start reaching my coughing tolerance limit (which is when I start to snap ribs)...
  16. I

    Can't quit coughing

    hydrocodone
  17. I

    Can't quit coughing

    hydrocodone
  18. I

    4th Pneumonia

    If he were my kid, I would INSIST on two weeks of IV antiobiotics. He needs to get rid of this now. Continual infection is just damaging his lungs. What % HTS is he on?
  19. I

    4th Pneumonia

    If he were my kid, I would INSIST on two weeks of IV antiobiotics. He needs to get rid of this now. Continual infection is just damaging his lungs. What % HTS is he on?
  20. I

    4th Pneumonia

    Yeah, a low BMI really messes with the lungs and overall health. You didnt mention whether his antibiotic rounds were all IV, oral, or both? Sorry this is such a hard time. February-April is always the worst for me too.
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