Search results
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What is your Great Strides Goal?
This is my first Great Strides walk, and i set my team goal at 5k. my personal goal of this is $1500, and I'm already a third of the way there!!!! I spoke to my brother yesterday, and we were also thinking about throwing a fundraiser for the CFF sometime in June, so hopefully we can get that... -
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What is your Great Strides Goal?
This is my first Great Strides walk, and i set my team goal at 5k. my personal goal of this is $1500, and I'm already a third of the way there!!!! I spoke to my brother yesterday, and we were also thinking about throwing a fundraiser for the CFF sometime in June, so hopefully we can get that... -
N
What is your Great Strides Goal?
This is my first Great Strides walk, and i set my team goal at 5k. my personal goal of this is $1500, and I'm already a third of the way there!!!! I spoke to my brother yesterday, and we were also thinking about throwing a fundraiser for the CFF sometime in June, so hopefully we can get that... -
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Benefit Dinner
have you talked to your social worker at your cf clinic? they sometimes know of programs that can help. I know in PA, a child with CF is covered under medicare/medicaid (i can never remember which one is which) until they are 18, no matter what the household income is. So for us, there are non... -
N
Benefit Dinner
have you talked to your social worker at your cf clinic? they sometimes know of programs that can help. I know in PA, a child with CF is covered under medicare/medicaid (i can never remember which one is which) until they are 18, no matter what the household income is. So for us, there are non... -
N
Benefit Dinner
have you talked to your social worker at your cf clinic? they sometimes know of programs that can help. I know in PA, a child with CF is covered under medicare/medicaid (i can never remember which one is which) until they are 18, no matter what the household income is. So for us, there are non... -
N
Benefit Dinner
have you talked to your social worker at your cf clinic? they sometimes know of programs that can help. I know in PA, a child with CF is covered under medicare/medicaid (i can never remember which one is which) until they are 18, no matter what the household income is. So for us, there are non... -
N
Benefit Dinner
have you talked to your social worker at your cf clinic? they sometimes know of programs that can help. I know in PA, a child with CF is covered under medicare/medicaid (i can never remember which one is which) until they are 18, no matter what the household income is. So for us, there are non... -
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update on Alexa
Well, Alexa has been coughing for about a week, so we brought her back ot the clinic, and they decided to up her nebs to albuterol every 4 hours round the clock. I am exhausted, but i do see a huge difference so it's all worth it. We also have her on oral antibiotics, so, i'm very happy... -
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update on Alexa
Well, Alexa has been coughing for about a week, so we brought her back ot the clinic, and they decided to up her nebs to albuterol every 4 hours round the clock. I am exhausted, but i do see a huge difference so it's all worth it. We also have her on oral antibiotics, so, i'm very happy... -
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update on Alexa
Well, Alexa has been coughing for about a week, so we brought her back ot the clinic, and they decided to up her nebs to albuterol every 4 hours round the clock. I am exhausted, but i do see a huge difference so it's all worth it. We also have her on oral antibiotics, so, i'm very happy... -
N
update on Alexa
Well, Alexa has been coughing for about a week, so we brought her back ot the clinic, and they decided to up her nebs to albuterol every 4 hours round the clock. I am exhausted, but i do see a huge difference so it's all worth it. We also have her on oral antibiotics, so, i'm very happy... -
N
update on Alexa
Well, Alexa has been coughing for about a week, so we brought her back ot the clinic, and they decided to up her nebs to albuterol every 4 hours round the clock. I am exhausted, but i do see a huge difference so it's all worth it. We also have her on oral antibiotics, so, i'm very happy... -
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HS trial starting for infants!
I just saw on the CFF website that they are going to be starting trials of HS on infants in early 2008. I haven't gotten a chance to talk to my clinic, but it sounds like something i would love to get alexa involved in. It says that 15 centers in the us are participating.....does anyone know... -
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HS trial starting for infants!
I just saw on the CFF website that they are going to be starting trials of HS on infants in early 2008. I haven't gotten a chance to talk to my clinic, but it sounds like something i would love to get alexa involved in. It says that 15 centers in the us are participating.....does anyone know... -
N
HS trial starting for infants!
I just saw on the CFF website that they are going to be starting trials of HS on infants in early 2008. I haven't gotten a chance to talk to my clinic, but it sounds like something i would love to get alexa involved in. It says that 15 centers in the us are participating.....does anyone know... -
N
HS trial starting for infants!
I just saw on the CFF website that they are going to be starting trials of HS on infants in early 2008. I haven't gotten a chance to talk to my clinic, but it sounds like something i would love to get alexa involved in. It says that 15 centers in the us are participating.....does anyone know... -
N
HS trial starting for infants!
I just saw on the CFF website that they are going to be starting trials of HS on infants in early 2008. I haven't gotten a chance to talk to my clinic, but it sounds like something i would love to get alexa involved in. It says that 15 centers in the us are participating.....does anyone know...