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  1. S

    coughing up blood?

    soo you were coughing up blood..well i cough up blood as well...its sometimes pretty consistent...when i first coughed blood up..it filled my toilet and quiet a few in the trash can up...so i went to the ER..well it so happened to be that i had cyst on my lungs and from having coughing spells i...
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    FINALLY GETTING IN WITH MY CF SPECIALIST

    yess..well my cf doc there was going to put me on a transplant list but then he got my LEV1 up to 57% and said that he didnt want the transplant done..but going back this time around im sure he'll decide something about the transplant and considering im starting to collect fatty ducts around my...
  3. S

    FINALLY GETTING IN WITH MY CF SPECIALIST

    yess..well my cf doc there was going to put me on a transplant list but then he got my LEV1 up to 57% and said that he didnt want the transplant done..but going back this time around im sure he'll decide something about the transplant and considering im starting to collect fatty ducts around my...
  4. S

    FINALLY GETTING IN WITH MY CF SPECIALIST

    yess..well my cf doc there was going to put me on a transplant list but then he got my LEV1 up to 57% and said that he didnt want the transplant done..but going back this time around im sure he'll decide something about the transplant and considering im starting to collect fatty ducts around my...
  5. S

    FINALLY GETTING IN WITH MY CF SPECIALIST

    OMG..i finally got back in with my cf specialist..im so tired of these stupid doctors here that dont know anything about cf..i need PFT's done sooo bad i cant even remember when the last time i had one done..and hopefully they can see where my lungs are..it is totally worth the drive...haha...
  6. S

    FINALLY GETTING IN WITH MY CF SPECIALIST

    OMG..i finally got back in with my cf specialist..im so tired of these stupid doctors here that dont know anything about cf..i need PFT's done sooo bad i cant even remember when the last time i had one done..and hopefully they can see where my lungs are..it is totally worth the drive...haha...
  7. S

    FINALLY GETTING IN WITH MY CF SPECIALIST

    OMG..i finally got back in with my cf specialist..im so tired of these stupid doctors here that dont know anything about cf..i need PFT's done sooo bad i cant even remember when the last time i had one done..and hopefully they can see where my lungs are..it is totally worth the drive...haha...
  8. S

    Something You Often Forget When Being Admitted

    i do like my make-up lol..and i sometimes go crazzie without it and thats one thing i constantly forget about..i always forget my tooth-brush as well ugh i hate hospital tooth-brushes..
  9. S

    Something You Often Forget When Being Admitted

    i do like my make-up lol..and i sometimes go crazzie without it and thats one thing i constantly forget about..i always forget my tooth-brush as well ugh i hate hospital tooth-brushes..
  10. S

    Something You Often Forget When Being Admitted

    i do like my make-up lol..and i sometimes go crazzie without it and thats one thing i constantly forget about..i always forget my tooth-brush as well ugh i hate hospital tooth-brushes..
  11. S

    Dreams

    i have never had a CF issue in my dreams..and just like you i am able to fight (no cough)...run (no cough) and just do everything "normal" ppl do...that is crazzie though how it dont follow you in your dreams...but your right its the only break from CF we get..
  12. S

    Dreams

    i have never had a CF issue in my dreams..and just like you i am able to fight (no cough)...run (no cough) and just do everything "normal" ppl do...that is crazzie though how it dont follow you in your dreams...but your right its the only break from CF we get..
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    Dreams

    i have never had a CF issue in my dreams..and just like you i am able to fight (no cough)...run (no cough) and just do everything "normal" ppl do...that is crazzie though how it dont follow you in your dreams...but your right its the only break from CF we get..
  14. S

    when you feel alone

    not knowing other CF patients can make you feel ALONE extremely ALONE..then you start thinking about life and how abnormal it is..when sleeping i never know if im going to make it through the nite constantly coughing not bein able to breath when sleeping..so many times i have woke up gasping for...
  15. S

    when you feel alone

    not knowing other CF patients can make you feel ALONE extremely ALONE..then you start thinking about life and how abnormal it is..when sleeping i never know if im going to make it through the nite constantly coughing not bein able to breath when sleeping..so many times i have woke up gasping for...
  16. S

    when you feel alone

    not knowing other CF patients can make you feel ALONE extremely ALONE..then you start thinking about life and how abnormal it is..when sleeping i never know if im going to make it through the nite constantly coughing not bein able to breath when sleeping..so many times i have woke up gasping for...
  17. S

    What is the best way to steralize and clean nebs?

    i soak them for atleast 30 minutes in boilin hot water/vinegar
  18. S

    What is the best way to steralize and clean nebs?

    i soak them for atleast 30 minutes in boilin hot water/vinegar
  19. S

    What is the best way to steralize and clean nebs?

    i soak them for atleast 30 minutes in boilin hot water/vinegar
  20. S

    What is the best way to steralize and clean nebs?

    vinegar, and hot water is the best way to clean and steralize nebs
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