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May I ask how you maintain a healthy weight with such a diet?

May I ask how you maintain a healthy weight with such a diet?

Perhaps it's simply an enzyme issue. How pancreatic insufficient are you? Did you notice an change in stools around the same time?

Perhaps it's simply an enzyme issue. How pancreatic insufficient are you? Did you notice an change in stools around the same time?

For me, exercise is the key. Another thing to consider is that this might be her new baseline, not that I wouldn't fight to change that, but sometimes that's the nature of the beast.

For me, exercise is the key. Another thing to consider is that this might be her new baseline, not that I wouldn't fight to change that, but sometimes that's the nature of the beast.

Yup, I can definitely understand your situation. I suppose my disinterest is 3 fold; (i) I am very lucky that I do not have any major health issues with CF (ii) we aren't sure the efficacy that 770 will have (if any) on varying mutations (iii) there could be people who would benefit so much...

Yup, I can definitely understand your situation. I suppose my disinterest is 3 fold; (i) I am very lucky that I do not have any major health issues with CF (ii) we aren't sure the efficacy that 770 will have (if any) on varying mutations (iii) there could be people who would benefit so much...

Thanks Mark for posting those links.

Thanks Mark for posting those links.

Frankly, if you are holding your own as far as PFT's and your particular pathologies, I would wait and let vertex do their thing. If you find yourself in rapid decline and are grasping for straws, then that is a different situation and I would probably try for it.

Frankly, if you are holding your own as far as PFT's and your particular pathologies, I would wait and let vertex do their thing. If you find yourself in rapid decline and are grasping for straws, then that is a different situation and I would probably try for it.

As I read it, db suggested that your high dose was because of your PI and your high fat diet. Not that your high fat diet caused your PI. Nor did db tell you what to eat, rather (again) made the connection between your high fat diet and the lipase dosage you require. If you require a high fat...

As I read it, db suggested that your high dose was because of your PI and your high fat diet. Not that your high fat diet caused your PI. Nor did db tell you what to eat, rather (again) made the connection between your high fat diet and the lipase dosage you require. If you require a high fat...

His response wasn't directed totally at you, it was more a response to Anien2. However, what he said is correct, your health should be a priority over anything else.

His response wasn't directed totally at you, it was more a response to Anien2. However, what he said is correct, your health should be a priority over anything else.

Yup, sure do.

Yup, sure do.

Welcome to the site Rubie!

Welcome to the site Rubie!