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  1. L

    Personal Spirometry Survey for insurance and a correction!

    Cool, makes sense. I've just been searching and thinking of getting one for a while now to help me better monitor myself. Unfortunately I don't have the luxury of often enough proper CF clinic visits nor do I have the best of lungs so I do all I can to keep myself where I'm at and not decline...
  2. L

    PARI eFlow Questions

    I've had a couple of the Aeroneb Go as well, it worked fine for the time I had it but it didn't last very long. They seem to crack and give problems quite quickly and this was the same for every one of them I had so for the cost it just wasn't worth it if I'd have to be replacing the thing so...
  3. L

    PARI eFlow Questions

    Totally OT but i want one so bad
  4. L

    how to meet/talk to other cf people

    Try the chat on Wednesday - I'm one of the Chat clowns, can talk allot of shiz sometimes but hopefully it get some laughs going <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. L

    Replacing neb cups.

    I usually get my Pari Sprints off ebay, can't remember what I pay now though
  6. L

    Never had a tune up

    That's one boat I wish I could say I was in!
  7. L

    So I'm 26 somehow.

    I take a whole bunch of supplements now. this is my second month on them and I've noticed a decent improvement in my health. Coming from where I was a few years ago I've been struggling to get back to that stage honestly and I may have just found some motivation and drive again to get back...
  8. L

    Personal Spirometry Survey for insurance and a correction!

    I'm interested to know that as well, haven't seen any. Could you give me some info on a Bluetooth one? Seems the question was dodged.
  9. L

    Personal Spirometry Survey for insurance and a correction!

    Huh? I'm a bit lost here, in all my 30 yrs of doing them they've always been digital - after all it takes all sorts of algorythms/calculations and what not to determine all the aspects of a full spirometry test. The only thing that was not was a peak flow meter. So not sure if that term is...
  10. L

    CHAT TONIGHT!

    I'll try to be there but will be late due to gym
  11. L

    NAC on back order

    Here you go http://nybcsecure.org/product_info.php?products_id=258 By the way is the 345 in your name an area code? If so you are where I am <img src="i/expressions/face-icon-small-wink.gif" border="0">
  12. L

    When cf will no longer be an incurable disease??

    Elena, Thanks for that link! To see this going on in the UK I have a bit more hope for it actually getting somewhere. I remember hearing when I was around 10 - 11 yrs old or so about gene therapy and being told "We expect a gene therapy cure in maybe 10 yrs or so just make sure you do all you...
  13. L

    When cf will no longer be an incurable disease??

    Aha! Yes! that's what I meant! Duh! LMAO - got while in a rant and thinking they got the name "Limeys" from taking and eating limes for the vitamin C while on their ocean voyages - and somehow scurvy turned into lyme disease lol...but my point of that still stands tho
  14. L

    New Forums

    Nice! We've been behind for a long time so good to see the moving forward. I assume this app is probably Tapatalk...
  15. L

    Those in Pain Management

    Amber, how is your potassium intake or levels? Not sure if that's something you have to watch or avoid with tx but I know low/depleted potassium levels will cause muscle cramps so it might be something to check out. I know this from competing in bodybuilding when you're in the cutting stage and...
  16. L

    When cf will no longer be an incurable disease??

    This topic is a touchy one and I'm probably gonna get bashed for my opinion but w/e I'll say my piece/what I think anyways. Honestly I doubt we'll ever see a cur for anything other than possibly pandemic type diseases and even those wouldn't be cures but preventions in the form of vaccines -...
  17. L

    Microcyn, Puracyn, Vetracyn

    Seems to work pretty good for keeping bacteria at bay, not sure if I'd say it would work for bad infections already out of control though. Also note GSH would be a good thing to ad as it cleans it up after it does its job.
  18. L

    I Am Cystic Fibrosis and I Am Not a Limitation!

    Mark? His name is Mark too or did you mistake my signature for his?
  19. L

    I Am Cystic Fibrosis and I Am Not a Limitation!

    Good vid and intentions I hope you can get the awareness out there with them!
  20. L

    I Am Cystic Fibrosis and I Am Not a Limitation!

    In before lock down/deletion into the abiss! lol
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