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Thanks for responding, her fevers are only at night and not right after a iv, her IV's are at 7,3, and 11 for one IV and 10 am for the second IV she has been on IV for almost three weeks now.

Thanks for responding, her fevers are only at night and not right after a iv, her IV's are at 7,3, and 11 for one IV and 10 am for the second IV she has been on IV for almost three weeks now.

Thanks for responding, her fevers are only at night and not right after a iv, her IV's are at 7,3, and 11 for one IV and 10 am for the second IV she has been on IV for almost three weeks now.

I was wondering if anybody besides my daughter gets fevers only at night when on IV's, right now she has 102.8 fever but in the day she's fine no fever, and her o2 levels are lower then normal for her.

I was wondering if anybody besides my daughter gets fevers only at night when on IV's, right now she has 102.8 fever but in the day she's fine no fever, and her o2 levels are lower then normal for her.

I was wondering if anybody besides my daughter gets fevers only at night when on IV's, right now she has 102.8 fever but in the day she's fine no fever, and her o2 levels are lower then normal for her.

we had no luck with periactin in the past for my daughter , but now take megace and have gained about 20 lb. in 2 months , this is the best she has looked in years.

we had no luck with periactin in the past for my daughter , but now take megace and have gained about 20 lb. in 2 months , this is the best she has looked in years.

we had no luck with periactin in the past for my daughter , but now take megace and have gained about 20 lb. in 2 months , this is the best she has looked in years.

hi sarah i'm also 13 with cf and my name is nichole i would like to talk 2 you. my e-mail address is bigtwinbrat@hotmail.com

hi sarah i'm also 13 with cf and my name is nichole i would like to talk 2 you. my e-mail address is bigtwinbrat@hotmail.com

hi sarah i'm also 13 with cf and my name is nichole i would like to talk 2 you. my e-mail address is bigtwinbrat@hotmail.com

we are in the US and have the eflow we do pulmozyme, tobramycin, hypertonic saline, and colistin in it , all but pulmozyme are smaller doses that we order from the pharmacy that we got the eflow from. and replacement cost is about $1800.00

we are in the US and have the eflow we do pulmozyme, tobramycin, hypertonic saline, and colistin in it , all but pulmozyme are smaller doses that we order from the pharmacy that we got the eflow from. and replacement cost is about $1800.00

we are in the US and have the eflow we do pulmozyme, tobramycin, hypertonic saline, and colistin in it , all but pulmozyme are smaller doses that we order from the pharmacy that we got the eflow from. and replacement cost is about $1800.00

Julie, you do what you need to do for those babies to have what they need, I know if I had to I would beg on the corner to provide for my kids. This makes me think of what my mother use to say "if you wait untill you can afford kids you'll never have them".

My child uses nutren 2.0 for tube feeding at night and I wanted to see if I could get her to drink extra during the day and was wondering has anyone tried the flavor packets that nestle has.