Search results

Diane I would be interested in finding out more info on the car show in PA if you could , I am not far from PA and would go just to support the benefit .

I was told about a t-shirts that say CF SUCKS on it but I am having problems finding them on the internet, does anyone know where I can get them ?

just wanted to let you know that Give Kids the World is wonderful, my kids had more fun there then in Disney they said its like being in a giant candy land. GKW has a nice web site you could look up and see what it looks like, if you want to know anything specific let me know. mom to 13...

I was just looking up centers in Maryland and saw National Institutes of Health listed and I know there are several people on this board from maryland and was wondering if anyone go there, if so that do you think of this center /

My child had her tube removed after she could keep her weight up without using the tube for about a year but her weight is in the 75% and they wanted it to stay that way, she had her tube for 10 years . As for body image she still keeps her mid-section covered due to the scar and indent it left.

I wanted to know if everyone throws away there opened hypertonic saline after 24 hours or do you continue to use it till it's gone, My directions say to draw 3ml of 10% and 2ml of 3% then throw away the rest , that seems to be a lot wasted each time.

I take my child to Johns Hopkins and if we are on the school age floor (6-11) we have a private room but if we are on the teen floor ( 12-21 ) we have to share a room and bathroom with one other person without CF.

I am having a problem with my pre-teens treatments , it seems like all we do is treatments all day long and have time for nothing else to the point she fights not to do them and could care less if she gets sick or not ( just wants to be normal she says ) we do treatments in the am and pm for...