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Sorry I have had trouble logging in and viewing here lately but Ennio was sweet enough to help me out today :) Yes Abby has had plenty of PICC lines that she did not have PA for but I think they were just meaning they are jumping the gun. As for the surgery being 2 months out...I highly...

Thanks!! I loved their book!

Me too MichaelL!! I would be lost without my spreadsheets! And like to go by actual numbers too. Good luck mom hope you get it figured out!!

Thanks everyone! No I have asked the CF team before and they refer me to her Pediatrician. And my cousins daughter is in the hospital now. Very scary...she was blue and lathargic. They are telling her that they need to remove her tounsils and adnoids. I just couldn't help but wonder if CF...

OK ladies....Abby has had labial adhesions since she was little. It's where her female parts adhere to themselves and close up. My cousin just mentioned to me that her child has them. I have always had CF in the back of my mind when talking to her and even suggested that she get her daughters...

HI!! I just wanted to say that in time things will get better. I remember my first year very clearly...it was so scary and there was something new I had to learn and adjust to every time I turned around. I was hurt, mad, afraid and just down right confused and struggling. Now...I am a...

OK so I have read through both of your posts. I don't want to totally knock what the dr has says because he has seen your kiddo and I haven't...but I kinda disagree with jumping right into a PICC line. I totally agree with Ratatosk. Get with ENT and have them culture to see what he is growing...

Jenny I also wanted to add that sinus rinses help greatly with the cough!! Unless he is totally clogged up with polyps...but if not... it gets all the yuck out and will give him a much needed break from the post nasal coughing. At first Abby hated it, but now she will ask me for one. I also...

Everyone had great info!! I just want to add that I would double check that the new ENT has dealt with CF patients before. Normally your clinic can refer you to one that many of their patients use that have actually dealt with CF before. Most CFer's at some point and time have seen an ENT for...

I couldn't agree more Amber!! My mom always taught me that if you don't have anything nice to say then don't say anything at all! There is no such thing as a dumb question!! There are only people here looking for answers....real answers from the heart.

I am so sorry for your loss and I understood your question perfectly. I think that is a personal preference. I have thought about it several times, but in the end I don't think I nor my husband have enough symptoms that I would want to put out the $ to know for sure....if that makes sense...

To get back to your question....yes the sinus surgery greatly helped her!! The cough went away, because the polyps that were holding the "crud" up there and just dripping it down the back of her throat went away. I was always so relieved after her surgeries and so was she. Even as little as...

Abby also for a while had a sinus surgery to remove polyps every 3 months. We changed to doing steroids before and after to help with the bleeding during surgery and then the swelling afterwards and we also now take a nasal steroid every night and haven't had a sinus surgery in almost 2 years...

When Abby's cough came persistent with no real reason it was her sinus'. Has he been checked out by an ENT? Not saying that is what it is but maybe he's got some polyps that are causing a problem. Abby's always got worse when she got hot by sports or running. Just a thought :) Good Luck

HI Justinsmama!! Everyone else please chime in but I thought that Pulmozyme and Hypersal was just routine for everyone? So I'm a little confused as to why they are just now offering that up...but glad he is getting on those...they will help!! And not sure where you live or what kind of winter...

Hi Sarah!!! Sounds like you had a fantastic easter!!! And chicks....what a wonderfully fun idea!!! But yes very messy and noisy LOL!!! Love the waffles and Peanut butter!! Abby won't touch Peanut Butter :( Oh how I wish she would! The kid will eat reese's pb cup but hates pb??!! And...

That is wonderful!! So excited for you!!!

Bless his heart!! So glad to hear his lungs sound so good!!

Thanks Jeanne!! I enjoyed watching that.

Lanor...so sorry to hear this!! So she had it in Dec? How long did they treat her before it got rid of it? I'm actually not totally familiar with Psuedo Fluorescens...Abby had the Psuedo Aeruginosa. Wonder what the difference is? She was treated with cipro and Tobi.....but they also had a...