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I know you already know this but what a true blessing you have!! Your little man will grow and be fine. Our CF kids are so strong and they in turn make us strong too. He will have lots of treatments to keep him healthy but he will still be your typical little miracle running around spreading...

I can't help you with that either....just wanted to say Congrats!!! Hopefully someone that does know will respond :)

Thanks everyone!! We still have to pinch ourselves every now and then!! Feeling very blessed! Just wanted to share this with everyone so they now how close they really are getting....even for me it still feels unreal sometimes the shear difference of the child I have now compared to the one I...

Abby 1 year Kalydeco Clinic Update I have updated everyone on facebook but I haven't been on here in quite some time because I have been on my first Vacation since Abby was diagnosed. I actually got to take my full 2 weeks and didn't have to spend my entire vacation at the hospital!!! It was...

My heart just broke in two for you! I can't imagine losing my sisters. I'm so sorry doesn't seem like the right words for such a thing :( You will be in my prayers along with her beautiful family.

I have no experience with teens so take this with a grain of salt but when my time comes and I know it will I plan on saying something to the effect of I won't nag you as long as you do what is expected of you. If you don't just be ready for me to stay on you like white on rice. I plan on...

I don't know anything about what you are fixing to go through just wanted to say good luck!!! I will say a prayer for you both!!

Abby has had a lot of surgeries starting at a young age. And had one of them gone wrong...I'm pretty sure it would have been a nightmare to get her to go back and do another!! Abby literally thought that surgery was going in and doing a weird breathing treatment that made her go to sleep with...

Welcome John43! :)

Good...Thank you for giving me a little more piece of mind :) I just worry :) Things have been sailing too smoothly for too long LOL!!!

Ok so I am trying really hard not to get too concerned about this but Abby is not gaining weight. She is growing taller but is keeping pretty much the same weight since March 1st. So is this normal?? Her BMI has went from 56% to 44%. Will she play catch up once she stops growing taller...

Nothing Earth Shattering or anything I am just still reeling from what a wonderful job Kim and all the volunteers that made Great Strides Houston such a success!! I have never had so much fun with my family and friends!! They truly rocked it this year. They had 3 clowns that did balloons...

Our ENT has found that giving Abby Prednisone before and after is the way to go for her. It makes the bleeding less during surgery and keeps the swelling down afterwards. Ask your ENT about trying that. It has done wonders for Abby!! Good Luck!!

Our experience with a bounce house scared me to death!! Abby played in there for about 5 minutes before coming out coughing so hard that she could hardly catch her breath! And no she was not sick at the time. I didn't have my albuteral with me and I was seriously scared more than I have ever...

Not sure about Tobi and Pulmozyme because we have to get that through a "special pharmacy" or our insurance won't approve it. But hyper-sal and creon yes :)

Zeeannie CF Services Pharmacy is between 5-6,000.00 over priced. If you shop around you can find it for 24,996 or something close where CF Services Pharmacy is 30,000. They just recently increased...by no small amount because they use to be 24,996. Also Abby is 7 and taking it off label...

Thanks cabadie1...that is how we treat Abby's as well...hers is a reoccurring problem that...has happened about 4 times, thankfully I have learned the signs to watch for and catch it early. Helenlight they are pushing for testing...I am trying not to push too hard as I have mentioned it several...

We love our Target Pharmacy. :)

I think your plan of action sounds great! She can be pissed about CF but she should always treat other the way she would want to be treated. Nip it in the bud mom! Too often I have heard parents letting their kids get away with being rude and chalking it up to CF....they are still kids that...

My daughters dr's like her to be at her baseline and if it drops any at all they are watching her and if were to drop that much they would either admit her for a tune up or figure out the problem. There has to be a reason for the drop. I would question the dr harder.