We have done Pulmozyme twice a day periodically. It does help him tremendously. We also wait for about 10 minutes after he is finished the pulmozyme to let it sit in his lungs and work before we start his airway clearance. I have no medical backing for that, it is just something we do because...
Hi Iamqueenofeverything,
I was a part time engineer, but managing treatments and my work for my son became too much. I started a side business for fun, now I am learning that it will replace that income and actually be more than I was making. I am really grateful and excited for it.
Hello,
I am currently using a germ guardian hot air nursery sanitizer to dry my Nebs, however, I need another and they are not in stock any where. Does anyone have any suggestions or alternatives to air drying?
Thank you in advance!
My son is 22 months and has been on Pulmozyme for the last 15 months without interuption. When we started it he was 6 months and used it on an as needed basis. Basically just when he was sick. I have noticed he does much better on Pulmozyme. His lungs are more clear now than at 6 months...
My son is 22 months and has been on Pulmozyme for the last 15 months without interuption. When we started it he was 6 months and used it on an as needed basis. Basically just when he was sick. I have noticed he does much better on Pulmozyme. His lungs are more clear now than at 6 months...
My son is 22 months and has been on Pulmozyme for the last 15 months without interuption. When we started it he was 6 months and used it on an as needed basis. Basically just when he was sick. I have noticed he does much better on Pulmozyme. His lungs are more clear now than at 6 months...
My son is 22 months and has been on Pulmozyme for the last 15 months without interuption. When we started it he was 6 months and used it on an as needed basis. Basically just when he was sick. I have noticed he does much better on Pulmozyme. His lungs are more clear now than at 6 months...
My son is 22 months and has been on Pulmozyme for the last 15 months without interuption. When we started it he was 6 months and used it on an as needed basis. Basically just when he was sick. I have noticed he does much better on Pulmozyme. His lungs are more clear now than at 6 months...
Hello Rosesixtyfive!
I also went back to work when my son was 6 months. It was really hard for me too. I had to go back for financial reasons. I actually posted a similar question when I was trying to prepare myself to go back. Being a parent to a child with CF can be difficult and often a...
Hello Rosesixtyfive!
I also went back to work when my son was 6 months. It was really hard for me too. I had to go back for financial reasons. I actually posted a similar question when I was trying to prepare myself to go back. Being a parent to a child with CF can be difficult and often a...
Hello Rosesixtyfive!
I also went back to work when my son was 6 months. It was really hard for me too. I had to go back for financial reasons. I actually posted a similar question when I was trying to prepare myself to go back. Being a parent to a child with CF can be difficult and often a...
Hello Rosesixtyfive!
I also went back to work when my son was 6 months. It was really hard for me too. I had to go back for financial reasons. I actually posted a similar question when I was trying to prepare myself to go back. Being a parent to a child with CF can be difficult and often a...
Hello Rosesixtyfive!
<br />
<br />I also went back to work when my son was 6 months. It was really hard for me too. I had to go back for financial reasons. I actually posted a similar question when I was trying to prepare myself to go back. Being a parent to a child with CF can be difficult...
Hello,
We have a 19 month old son who has CF he was diagnosed at birth. His doctor is now thinking he also has Asthma. I have heard this is very common in kids with CF. Does any one have any advice or resources about kids with both CF and Asthma?
Thanks for your help!
Heidi
Hello,
We have a 19 month old son who has CF he was diagnosed at birth. His doctor is now thinking he also has Asthma. I have heard this is very common in kids with CF. Does any one have any advice or resources about kids with both CF and Asthma?
Thanks for your help!
Heidi
Hello,
We have a 19 month old son who has CF he was diagnosed at birth. His doctor is now thinking he also has Asthma. I have heard this is very common in kids with CF. Does any one have any advice or resources about kids with both CF and Asthma?
Thanks for your help!
Heidi
Hello,
We have a 19 month old son who has CF he was diagnosed at birth. His doctor is now thinking he also has Asthma. I have heard this is very common in kids with CF. Does any one have any advice or resources about kids with both CF and Asthma?
Thanks for your help!
Heidi
Hello,
<br />
<br />We have a 19 month old son who has CF he was diagnosed at birth. His doctor is now thinking he also has Asthma. I have heard this is very common in kids with CF. Does any one have any advice or resources about kids with both CF and Asthma?
<br />
<br />Thanks for your...
Hello, I am so sorry to hear about your twins. My husband and I also found out we were carriers when I was pregnant. My son was diagnosed at 2 weeks old.
I am a professional engineer and had worked 40 hours plus a week. I took six months off. My husband is an attoney, he was given seven...
Hello, I am so sorry to hear about your twins. My husband and I also found out we were carriers when I was pregnant. My son was diagnosed at 2 weeks old.
I am a professional engineer and had worked 40 hours plus a week. I took six months off. My husband is an attoney, he was given seven...
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