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Does anyone have any suggestions on how to teach your little one to spit out mucus? My DD is 17 months and has a cold right now. She is coughing up a large amount of mucus and because she is swallowing it, she often ends up choking and gagging until she throws up, especially at night. I am going...

My DD (17 months) is ddF508. Our situations aren't exactly the same but I do have another daugther (15 years) and a step-son (18 years). We were actually quite worried about my step-son when our daughter was diagnosed because he has had asthma and breathing problems his whole life. He was sweat...

I learned from a dietician (not a CF dietician) that our bodies can't store protein, only carbs and fat. So if you reduce the amount of carbs you have and up the protein you may find that you lose weight. She was telling me this because I am trying to lose weight (my dd is the one with CF not...

They have always told us call if cold symptoms persist longer than 5 days. That being said, they also say to call if we are concerned. Given that you are posting here, I imagine you are concerned. I would jsut go ahead and give them a call. It's what they are there for anyway.

I too was there a little over a year ago. My beautiful dd was dx at 11 days and it felt like my whole world came crashing down. I remember the denial I went through at the beginning. I was so sure they were wrong, she was beautiful and strong and there was no way she could be "sick". In the...

My thoughts are with his family and friends... there are no other words.

My mother gave us one for our daughter for Christmas. In general, our understanding is that it can't hurt. There's not a lot of proof that it does anything, but for me, as long as it isn't going to hurt her, then I'm game. My daughter won't always let us leave it on, she's 15 months and...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>sweetninis</b></i> @forever dance I see my daughter and your baby have same mutations and are almost same age how much weight your baby has right now? My girl is 7 months and 15 days old and she is 4.5 kg right now.</end quote> Sorry...

My deepest condolences. Your family will be in my thoughts.

Me too. Alysia.

My daughter just turned 7 months and she still gets majority of her calories through breastmilk. I always offer her breastmilk before every meal to ensure that she gets enough calories because it has more calories then the solid food does. That being said, she eats pretty well and we have...

My daughter just turned 7 months and she still gets majority of her calories through breastmilk. I always offer her breastmilk before every meal to ensure that she gets enough calories because it has more calories then the solid food does. That being said, she eats pretty well and we have...

I have a 7 month old daughter with CF so I'm pretty new to all this myself. But you can message me. I also have facebook.

I have a 7 month old daughter with CF so I'm pretty new to all this myself. But you can message me. I also have facebook.

I suck at coming up with names. Our team name is "Kaylee Bears" only because our daughter's name is Kaylee and we always call her Kaylee Bear. You could go with something like "Striding for Sarah" or "Sarah's Striders". I'm sure someone else will come up with a much better idea.

I suck at coming up with names. Our team name is "Kaylee Bears" only because our daughter's name is Kaylee and we always call her Kaylee Bear. You could go with something like "Striding for Sarah" or "Sarah's Striders". I'm sure someone else will come up with a much better idea.

My DD was diagnosed at 1.5 weeks through newborn screening.

My DD was diagnosed at 1.5 weeks through newborn screening.

I just wanted to add that my daughter's bowel movements looked pretty much like a breastfed baby's with the exception that she would always blow out the diaper. I was actually kind of surprised when we found out she was pancreatic insufficient because of that. I would definitely push for the...

I just wanted to add that my daughter's bowel movements looked pretty much like a breastfed baby's with the exception that she would always blow out the diaper. I was actually kind of surprised when we found out she was pancreatic insufficient because of that. I would definitely push for the...