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Very, very grieved to hear it, Tom.

I'm with Printer. A swift kick in the ass. My mom and dad would not have stood for this. My healthcare was early on placed outside the realm of anything negotiable. I could negotiate curfews, what I would and would not eat at dinner when I didn't like something, etc; but my healthcare was...

CF patients can get TB just like everybody else. Where did you hear they can't?

I am caucasion w/ CF and I tan rather nicely. But I exercise outside year round, so that may help keep me from getting too white in the winter. I'm also getting more religious about sunblock when I go out.

I probably oversalt my chicken seasonings, but I don't salt my food once it hits the table. In fact, I didn't own a salt shaker until I was 38. I do, however, make certain that my salt needs are met while exercising. Gatorade (and similar) does not have enough electrolytes for CF people. I...

I also lost my dad to IPF less than two years ago. The pain of watching him deteriorate, go on oxygen, deteriorate more, and eventually die in ICU of a pulmonary embolism is still quite fresh. And of course I've watched many of my CF friends pass as well. But this is the thing: their road is...

I absolutely go to work on IVs. I also run and bike, too, sometimes while actually infusing. (Of course, that will probably be after I've stopped feeling like crap from the IVs themselves.)

Geez, I just rinse mine out and let them dry on a clean washcloth. No wonder I'm sick.

WildCherry -- I have reached the point where I almost lament that the CFTR gene was found at all. The sweat test was - and still is - the gold standard for diagnosing cystic fibrosis. The genetic testing is not definitive, yet so many people are hyper-focused on it. They think that if they...

In theory, with improved fitness, you won't be as tired. It takes time for your body to respond, and you've only given it a couple of days.

In theory, with improved fitness, you won't be as tired. It takes time for your body to respond, and you've only given it a couple of days.

The UK has the CF Trust, I believe. I have seen their lime-green jerseys while running the NYC marathon. (Them running, not me. Though I did that once, too.)

The UK has the CF Trust, I believe. I have seen their lime-green jerseys while running the NYC marathon. (Them running, not me. Though I did that once, too.)

My fertility report simply stated "no sperm detected." Mutation is probably not the dominant factor in whether a patient's vas deferens has been blocked (and possibly reabsorbed by the body). The vas deferens (there are two of them) are not glands, they're ducts. As such, they're as subject...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>athletixbc</b></i> Currently 34%, highest it's been in almost 3 years and up from 25% at the start of my last admission in February 2012. I've been worked up for transplant but still too healthy to go on the wait list. <img...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>athletixbc</b></i> Currently 34%, highest it's been in almost 3 years and up from 25% at the start of my last admission in February 2012. I've been worked up for transplant but still too healthy to go on the wait list. <img...

"Afflicted" would have been a good choice, too; especially if the point was to tug at those heartstrings.

"Afflicted" would have been a good choice, too; especially if the point was to tug at those heartstrings.

RainbowBright: TOTALLY Born This Way. Great pick! I commented a while ago that for me the go-to song is It's My Life. Last Sunday I did the TD Bank Five Boro Bike Tour and brought a GoPro along with me, for timelapse stills. Monday I made a video of the ride. Guess what I used for a...

In addition to "It's My Life" as previously mentioned, I also find that Garth Brooks "Standing Outside The Fire" bears a lot of meaning for me.