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    What song do you relate your CF fight to

    Originally posted by: stillkicking I've enjoyed Jon Bon Jovi's It's My Life, particularly when it comes to dealing with some medical personnel<img src=""> EXACTLY THIS. That song's on my workout mix and I try to time it with the hardest portion of the workout.
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    Hypertonic saline (hts) & electronics

    Oh yes. Many, many optical drive failures. And every time the techs at Apple crack into my computers, screens, etc, they comment on the mysterious white powder coating everything. I keep my mouth shut.
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    Hypertonic saline (hts) & electronics

    Oh yes. Many, many optical drive failures. And every time the techs at Apple crack into my computers, screens, etc, they comment on the mysterious white powder coating everything. I keep my mouth shut.
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    New Born Screening Positive

    CF is a diagnosis based on SYMPTOMS, not genetic markers. Many genes fail to express themselves even when we expect them to. The gold standard for CF diagnosis, after a workup that has evaluated the patient and identified CF-inclusive symptoms, is the sweat test. High chloride = CF. Do not...
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    New Born Screening Positive

    CF is a diagnosis based on SYMPTOMS, not genetic markers. Many genes fail to express themselves even when we expect them to. The gold standard for CF diagnosis, after a workup that has evaluated the patient and identified CF-inclusive symptoms, is the sweat test. High chloride = CF. Do not...
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    High Calorie Snacks

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>TreasureGoddess</b></i> To get extra calories, mix in some dry milk powder into the milk in the jug/carton, shake well and once it dissolves you don't notice any taste or texture difference, just more calories & protein too...
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    High Calorie Snacks

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>TreasureGoddess</b></i> To get extra calories, mix in some dry milk powder into the milk in the jug/carton, shake well and once it dissolves you don't notice any taste or texture difference, just more calories & protein too...
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    Best birth control?

    Abstinence is the best birth control. If you're going to have sex anyway, you need to use BOTH a long-term birth control AND condoms. And none of it is a guarantee against pregnancy. The pill and implants do a great job of preventing pregnancy, but not STDs. Condoms are the only line of defense...
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    Best birth control?

    Abstinence is the best birth control. If you're going to have sex anyway, you need to use BOTH a long-term birth control AND condoms. And none of it is a guarantee against pregnancy. The pill and implants do a great job of preventing pregnancy, but not STDs. Condoms are the only line of defense...
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    Feel Like He's Killing Himself- Please Please Help

    You say he's taking his transplant meds, but not his enzymes or insulin. But what are his glucose readings? What's his a1c? How's his weight? What is his resting heart rate? These are questions with real numbers attached to the answers. If he's keeping his weight up effectively and not...
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    Feel Like He's Killing Himself- Please Please Help

    You say he's taking his transplant meds, but not his enzymes or insulin. But what are his glucose readings? What's his a1c? How's his weight? What is his resting heart rate? These are questions with real numbers attached to the answers. If he's keeping his weight up effectively and not...
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    Clarification

    Most important --- for those of you who do not have G551D, please report back as to whether Kalydeco is making a difference!
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    Clarification

    Most important --- for those of you who do not have G551D, please report back as to whether Kalydeco is making a difference!
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    should i be concerned?

    When I switched doctors a few years ago, my one rule was this: we make ONE change at a time to my long-term regimen. If you make more than one, how do you know which change made you feel worse or better? FWIW, I agree ibuprofen will destroy you - my mom has 50% renal function because of...
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    should i be concerned?

    When I switched doctors a few years ago, my one rule was this: we make ONE change at a time to my long-term regimen. If you make more than one, how do you know which change made you feel worse or better? FWIW, I agree ibuprofen will destroy you - my mom has 50% renal function because of...
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    IV and work

    I do IVs 3-4 times a year at this point. Mine come in little pressurized balls called home pumps. I pack what I need for the day and go to work. I have even done IVs while teaching. They are fairly unobtrusive. The most intrusive part is starting another dose or ending and locking off w/...
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    IV and work

    I do IVs 3-4 times a year at this point. Mine come in little pressurized balls called home pumps. I pack what I need for the day and go to work. I have even done IVs while teaching. They are fairly unobtrusive. The most intrusive part is starting another dose or ending and locking off w/...
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    IV time, again! First time with the port

    Overall, I think you'll find the port a great deal easier to manage in the long term and quite a lot easier when starting and stopping IVs! Showering is a chore no matter how you're accessed. I'm assuming your port is in your upper chest area, like mine. You can get what are aqua-guards from...
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    IV time, again! First time with the port

    Overall, I think you'll find the port a great deal easier to manage in the long term and quite a lot easier when starting and stopping IVs! Showering is a chore no matter how you're accessed. I'm assuming your port is in your upper chest area, like mine. You can get what are aqua-guards from...
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    Career Path (HELP!!)

    Hi Robin. I only have a couple thoughts, now that I'm 20 years out of high school. 1) My aptitude tests always suggested different things. Fact is, intelligent people w/ an affinity for language and science can succeed nearly anywhere doing anything. So...take those test results with a grain...
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