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Hi we used the nosefrida snot sucker (you can buy them and the filters on amazon) we made sure we washed everything very carefully after each use (I had about 10 in the end!) and used that with a squirt of saline wait a couple of minutes then suck the mucus out. I can't say my son liked this but...

Hi I was hoping for some advice on my 2 year old. He won't drink his milk/pediasure through anything other than a baby bottle we have been trying to switch him for ages, his twin sister is already on to using a grown up cup, And while there are a million forums on the net saying don't give in...

What you say is fair, and is exeactly what I am afraid of. we were thinking a couple of mornings a week when they get to 2 (you have to register now as they cap the class at 7) We only recently moved to the US so we have no family and only a couple of friends so thought this may be fun for them...

ILEX is used alot in in old peoples homes - I get mine from an old fashioned pharmacy CVS couldnt help me at all! be careful its abit like glue I have stuck my fingers together and my sons butt cheeks so you have to let it dry (lots of fun holding legs in the air and hoping that now is not a...

Thanks Bill - I have worked in rare diseases for over 15 years but nothing prepares you for actually having you gorgeous baby have one! I know all gene types are different but seeing that you are 74 just gives me hope thank you I know your right and I am sure alot of people think Im stupid...

I hear you on the poop discussion! we often forgot that others did not want to discuss this! I an highly recommend ILEX for the contact rash where the skin has broken it aheres to the broken skin and then you layer it with vaseline thenjust wipe the vaseline away with any new poop - allows the...

Ok - I am the very proud mum of twins (boy/girl) one with and one without CF. They are the best of friends but I have been thinking about sending them to preschool for a couple of mornings a week and I wonder if thats selfish of me when I dont have to and he could stay home and safe. Thoughts...