Search results

  1. J

    Pain Issues Pre-Transplant

    i had bipap set up for me when i was in the hospital. the RTs did it and figured out the correct settings and then the case manager put in the order with my homecare people. it saved me the sleep study. next time you go in, see if you can work that out. it's so much easier! I would ask dr d...
  2. J

    Pain Issues Pre-Transplant

    yeah, haley, it's gabapentin (neurontin) and it's used for like fibromyalgia, nerve, and other kinds of neuropathic pain. it's not too bad, i'm not as comfortable as i am on oxy but if i get a dose of klonopin in the morning (to relax my muscles) and take the gabapentin three times a day, it's...
  3. J

    Pain Issues Pre-Transplant

    yeah, haley, it's gabapentin (neurontin) and it's used for like fibromyalgia, nerve, and other kinds of neuropathic pain. it's not too bad, i'm not as comfortable as i am on oxy but if i get a dose of klonopin in the morning (to relax my muscles) and take the gabapentin three times a day, it's...
  4. J

    Pain Issues Pre-Transplant

    yeah, haley, it's gabapentin (neurontin) and it's used for like fibromyalgia, nerve, and other kinds of neuropathic pain. it's not too bad, i'm not as comfortable as i am on oxy but if i get a dose of klonopin in the morning (to relax my muscles) and take the gabapentin three times a day, it's...
  5. J

    Mirena Birth Control for Cysters?

    My OBGYN actually discouraged Mirena when I asked about it. She said, ignoring the CF, it's more likely to cause problems in women who have never had a baby and they don't like to put them in if that's the case. Specifically related to my CF, one of the downsides of Mirena is that it has a...
  6. J

    Mirena Birth Control for Cysters?

    My OBGYN actually discouraged Mirena when I asked about it. She said, ignoring the CF, it's more likely to cause problems in women who have never had a baby and they don't like to put them in if that's the case. Specifically related to my CF, one of the downsides of Mirena is that it has a...
  7. J

    Mirena Birth Control for Cysters?

    My OBGYN actually discouraged Mirena when I asked about it. She said, ignoring the CF, it's more likely to cause problems in women who have never had a baby and they don't like to put them in if that's the case. Specifically related to my CF, one of the downsides of Mirena is that it has a...
  8. J

    vitamin dosages in aquadek/sourceCF softgels

    hahaha awesome, i'll be popping 7 of those suckers! Maybe I can get a stronger version by prescription, I'll ask at clinic this week. thanks very much!
  9. J

    vitamin dosages in aquadek/sourceCF softgels

    hahaha awesome, i'll be popping 7 of those suckers! Maybe I can get a stronger version by prescription, I'll ask at clinic this week. thanks very much!
  10. J

    vitamin dosages in aquadek/sourceCF softgels

    hahaha awesome, i'll be popping 7 of those suckers! Maybe I can get a stronger version by prescription, I'll ask at clinic this week. <br /> <br />thanks very much!
  11. J

    vitamin dosages in aquadek/sourceCF softgels

    Hello everyone, it's been a while... I'm still waiting for lungs (18 months now, and counting!) Anyway, I was hoping someone had a bottle of ADEKs handy and could list how much of each vitamin one tablet contains... specifically I'm looking for the amount of K, but might as well know them all...
  12. J

    vitamin dosages in aquadek/sourceCF softgels

    Hello everyone, it's been a while... I'm still waiting for lungs (18 months now, and counting!) Anyway, I was hoping someone had a bottle of ADEKs handy and could list how much of each vitamin one tablet contains... specifically I'm looking for the amount of K, but might as well know them all...
  13. J

    vitamin dosages in aquadek/sourceCF softgels

    Hello everyone, it's been a while... I'm still waiting for lungs (18 months now, and counting!) <br /> <br />Anyway, I was hoping someone had a bottle of ADEKs handy and could list how much of each vitamin one tablet contains... specifically I'm looking for the amount of K, but might as well...
  14. J

    Six minute walk test

    someone mentioned that the worse you do, the higher your lung allocation score, which is true... but it also depends on the transplant center. where i go, to agree to list you, they want you to be able to walk a minimum distance... 1000- 1200 is what i am pulling out of my brain, but that could...
  15. J

    Six minute walk test

    someone mentioned that the worse you do, the higher your lung allocation score, which is true... but it also depends on the transplant center. where i go, to agree to list you, they want you to be able to walk a minimum distance... 1000- 1200 is what i am pulling out of my brain, but that could...
  16. J

    Six minute walk test

    someone mentioned that the worse you do, the higher your lung allocation score, which is true... but it also depends on the transplant center. where i go, to agree to list you, they want you to be able to walk a minimum distance... 1000- 1200 is what i am pulling out of my brain, but that could...
  17. J

    Six minute walk test

    someone mentioned that the worse you do, the higher your lung allocation score, which is true... but it also depends on the transplant center. where i go, to agree to list you, they want you to be able to walk a minimum distance... 1000- 1200 is what i am pulling out of my brain, but that could...
  18. J

    Six minute walk test

    someone mentioned that the worse you do, the higher your lung allocation score, which is true... but it also depends on the transplant center. where i go, to agree to list you, they want you to be able to walk a minimum distance... 1000- 1200 is what i am pulling out of my brain, but that could...
  19. J

    Is Bi Pap a trend in treatments

    it took me more than a month to finally sleep through the night with my bipap, and even longer after that to feel fully comfortable with it during sleep and with the transition to a cannula in the morning when i woke up. i agree with trying out different masks, i did that in the hospital when...
  20. J

    Is Bi Pap a trend in treatments

    it took me more than a month to finally sleep through the night with my bipap, and even longer after that to feel fully comfortable with it during sleep and with the transition to a cannula in the morning when i woke up. i agree with trying out different masks, i did that in the hospital when...
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