Search results

  1. J

    Do your hands wrinkle excessively when you swim?

    it's a cf thing, you're right, it has to do with our salt imbalance... so funny how it happens, like 2 seconds of water contact and i'm pruned up. if you search through this site, you'll find a bunch of posts on this phenomenon!
  2. J

    Do your hands wrinkle excessively when you swim?

    it's a cf thing, you're right, it has to do with our salt imbalance... so funny how it happens, like 2 seconds of water contact and i'm pruned up. if you search through this site, you'll find a bunch of posts on this phenomenon!
  3. J

    Do your hands wrinkle excessively when you swim?

    it's a cf thing, you're right, it has to do with our salt imbalance... so funny how it happens, like 2 seconds of water contact and i'm pruned up. if you search through this site, you'll find a bunch of posts on this phenomenon!
  4. J

    frustrated during this waiting

    my question about the oxygen came out wrong... i would need to rent a portable concentrator to go to cleveland for an evaluation? has anyone done that? I only have the home fill system. thanks piper, it's nice hearing from people who are in the same situation.
  5. J

    frustrated during this waiting

    my question about the oxygen came out wrong... i would need to rent a portable concentrator to go to cleveland for an evaluation? has anyone done that? I only have the home fill system. thanks piper, it's nice hearing from people who are in the same situation.
  6. J

    frustrated during this waiting

    my question about the oxygen came out wrong... i would need to rent a portable concentrator to go to cleveland for an evaluation? has anyone done that? I only have the home fill system. thanks piper, it's nice hearing from people who are in the same situation.
  7. J

    frustrated during this waiting

    my question about the oxygen came out wrong... i would need to rent a portable concentrator to go to cleveland for an evaluation? has anyone done that? I only have the home fill system. thanks piper, it's nice hearing from people who are in the same situation.
  8. J

    frustrated during this waiting

    my question about the oxygen came out wrong... i would need to rent a portable concentrator to go to cleveland for an evaluation? has anyone done that? I only have the home fill system. <br /> <br />thanks piper, it's nice hearing from people who are in the same situation.
  9. J

    frustrated during this waiting

    Hi everyone! I've been listed for 11 months now, and as I near the 1 year mark, I'm getting super frustrated at the lack of progress being made. I had a call in September, I was the backup and nobody got the lungs b/c the donor didn't fare too well, but since then I haven't heard anything...
  10. J

    frustrated during this waiting

    Hi everyone! I've been listed for 11 months now, and as I near the 1 year mark, I'm getting super frustrated at the lack of progress being made. I had a call in September, I was the backup and nobody got the lungs b/c the donor didn't fare too well, but since then I haven't heard anything...
  11. J

    frustrated during this waiting

    Hi everyone! I've been listed for 11 months now, and as I near the 1 year mark, I'm getting super frustrated at the lack of progress being made. I had a call in September, I was the backup and nobody got the lungs b/c the donor didn't fare too well, but since then I haven't heard anything...
  12. J

    frustrated during this waiting

    Hi everyone! I've been listed for 11 months now, and as I near the 1 year mark, I'm getting super frustrated at the lack of progress being made. I had a call in September, I was the backup and nobody got the lungs b/c the donor didn't fare too well, but since then I haven't heard anything...
  13. J

    frustrated during this waiting

    Hi everyone! I've been listed for 11 months now, and as I near the 1 year mark, I'm getting super frustrated at the lack of progress being made. I had a call in September, I was the backup and nobody got the lungs b/c the donor didn't fare too well, but since then I haven't heard anything...
  14. J

    Distance to Center

    your distance shouldn't effect if you are called or not. it is preferable to be closer, so that both donor and recipient can be evaluated that much faster, but it absolutely should not be a disqualifying factor to getting notified that there is a match. my center gives up to 4 hours to get...
  15. J

    Distance to Center

    your distance shouldn't effect if you are called or not. it is preferable to be closer, so that both donor and recipient can be evaluated that much faster, but it absolutely should not be a disqualifying factor to getting notified that there is a match. my center gives up to 4 hours to get...
  16. J

    Distance to Center

    your distance shouldn't effect if you are called or not. it is preferable to be closer, so that both donor and recipient can be evaluated that much faster, but it absolutely should not be a disqualifying factor to getting notified that there is a match. my center gives up to 4 hours to get...
  17. J

    Distance to Center

    your distance shouldn't effect if you are called or not. it is preferable to be closer, so that both donor and recipient can be evaluated that much faster, but it absolutely should not be a disqualifying factor to getting notified that there is a match. my center gives up to 4 hours to get...
  18. J

    Distance to Center

    your distance shouldn't effect if you are called or not. it is preferable to be closer, so that both donor and recipient can be evaluated that much faster, but it absolutely should not be a disqualifying factor to getting notified that there is a match. my center gives up to 4 hours to get...
  19. J

    Stenotrophomonas maltophilia

    i first cultured out steno malt a few years ago. my strain is pretty much resistant to everything, but with the few drugs that work on it, we've managed to knock it back enough that it hasn't shown up in cultures for almost 6 months now. it's just one more bacterium to fight off.
  20. J

    Stenotrophomonas maltophilia

    i first cultured out steno malt a few years ago. my strain is pretty much resistant to everything, but with the few drugs that work on it, we've managed to knock it back enough that it hasn't shown up in cultures for almost 6 months now. it's just one more bacterium to fight off.
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