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I have 4 kids, 3 with CF. Recently my older two boys have been having issues with pancreatitis. *** all 3 boys are PS*** So, the two older boys have had additional labs done, etc, dealing with bouts of extreme pain, some malabsorbtion now, etc. Right before Christmas my 4 year old Cf'er started...

My son's liver enzymes are out of whack, and after max does of ursodiol 3xs a day and with the results of the latest ultrasound, the dr just prescribed Phenobarbital. I googled it, and it it's coming up as an anti seizure medication??? Is anyone using this for elevated liver enzymes/ liver...

Was wondering if anyone out there had their child's newborn screen come back negative, to later run genetics or sweat test and confirm diagnosis of cf? Trying to find statistics on this on the web, but no luck.

Got and email from 65redroses.com that Oprah bought the rights to show Eva's documentary here in the U.S. on her new OWN network coming in 2011. Dates still not announced for when it is to be aired, but definitely something to be excited about. 65_RedRoses picked up by Oprah Winfrey's...

Got and email from 65redroses.com that Oprah bought the rights to show Eva's documentary here in the U.S. on her new OWN network coming in 2011. Dates still not announced for when it is to be aired, but definitely something to be excited about. 65_RedRoses picked up by Oprah Winfrey's...

For all of you on Facebook, you can join the 65 red roses page and there is a petition on there to get Eva's documentary broadcast here in the US. You can go to www.65redroses.com and click on the facebook icon to make sure you get the right group. This is the "official" group. Hope you all...

For all of you on Facebook, you can join the 65 red roses page and there is a petition on there to get Eva's documentary broadcast here in the US. You can go to www.65redroses.com and click on the facebook icon to make sure you get the right group. This is the "official" group. Hope you all...

I know a lot of you have followed Eva's (65_redroses) on live journal. After her passing a saw a post on there regarding her documentary and getting it in the US. It said we should lobby networks. I would be very interested in viewing the full documentary, not just the trailer... and I think...

I know a lot of you have followed Eva's (65_redroses) on live journal. After her passing a saw a post on there regarding her documentary and getting it in the US. It said we should lobby networks. I would be very interested in viewing the full documentary, not just the trailer... and I think...

Hello everyone, I don't post too much but wanted to let you/admin know that I changed my name. When I joined this site I thought it was just my youngest son who had cf. The other 2 were later diagnosed and I still was only "mommy2diego" I'm also mommy to Raymon and Richard... so thought it was...