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I posted here awhile back while we were pursuing a diagnosis for my son. He came back with the 5T variant, but they could not find any known CF mutation in his Ambry. Yet, here we are again with another pseudo infection. He is on Tobi and Cipro for the next two weeks. My question, is that I...

I posted here awhile back while we were pursuing a diagnosis for my son. He came back with the 5T variant, but they could not find any known CF mutation in his Ambry. Yet, here we are again with another pseudo infection. He is on Tobi and Cipro for the next two weeks. My question, is that I...

I posted here awhile back while we were pursuing a diagnosis for my son. He came back with the 5T variant, but they could not find any known CF mutation in his Ambry. Yet, here we are again with another pseudo infection. He is on Tobi and Cipro for the next two weeks. <br /> <br />My...

My fear is that I have no avenue to take all of the precautionary measures and get the support he would need. She said that when he gets older, there would probably be tests that could confirm things for good. Well, that's great, but does that mean we go through the next several years of him...

My fear is that I have no avenue to take all of the precautionary measures and get the support he would need. She said that when he gets older, there would probably be tests that could confirm things for good. Well, that's great, but does that mean we go through the next several years of him...

My fear is that I have no avenue to take all of the precautionary measures and get the support he would need. She said that when he gets older, there would probably be tests that could confirm things for good. Well, that's great, but does that mean we go through the next several years of him...

And they are negative. He has the 5t gene on one and 7t on the other, but no "known" CF gene. However, the doctor is not ready to close the door on his case. She says that given everything, including having cultured psuedomonas and achrombacter, that there is something. She said, and she...

And they are negative. He has the 5t gene on one and 7t on the other, but no "known" CF gene. However, the doctor is not ready to close the door on his case. She says that given everything, including having cultured psuedomonas and achrombacter, that there is something. She said, and she...

And they are negative. He has the 5t gene on one and 7t on the other, but no "known" CF gene. However, the doctor is not ready to close the door on his case. She says that given everything, including having cultured psuedomonas and achrombacter, that there is something. She said, and she...

My son uses Flovent and it has made a big difference in his asthma and we have had no side effects.

My son uses Flovent and it has made a big difference in his asthma and we have had no side effects.

My son uses Flovent and it has made a big difference in his asthma and we have had no side effects.

My son had been on Levaquin for two weeks for a pretty bad pseudo infection. And then when there was still some left, he was put on two weeks of Tobi and Cipro. He gave a sputum sample on Wednesday and we got a call today that the culture was clear and grew only normal flora! We are still...

My son had been on Levaquin for two weeks for a pretty bad pseudo infection. And then when there was still some left, he was put on two weeks of Tobi and Cipro. He gave a sputum sample on Wednesday and we got a call today that the culture was clear and grew only normal flora! We are still...

My son had been on Levaquin for two weeks for a pretty bad pseudo infection. And then when there was still some left, he was put on two weeks of Tobi and Cipro. He gave a sputum sample on Wednesday and we got a call today that the culture was clear and grew only normal flora! <br /> <br />We...

My son said that it hurt when they did it on the first arm, however he was completely distracted after we started playing UNO, so I don't think it actually hurt...I just don't think he liked the sensation.

My son said that it hurt when they did it on the first arm, however he was completely distracted after we started playing UNO, so I don't think it actually hurt...I just don't think he liked the sensation.

My son said that it hurt when they did it on the first arm, however he was completely distracted after we started playing UNO, so I don't think it actually hurt...I just don't think he liked the sensation.

Jmom...I'm so happy that you have gotten your answer! What does it mean for your daughter now? Part of me would be relieved if my son's test came back with no known mutations, but that just opens the door for more testing because they are sure something is wrong. Where do you go from here...

Jmom...I'm so happy that you have gotten your answer! What does it mean for your daughter now? Part of me would be relieved if my son's test came back with no known mutations, but that just opens the door for more testing because they are sure something is wrong. Where do you go from here...