Search results

Does the "sadly" mean that you see positive effects and you are sad that it is going to stop ? So vx-809 is not completely ruled out ? I have read blogs, where it is speculated that it is an issue of lipoabsorption where VX-770 and VX-809 compete... (both of them are lipophilic). This issue may...

Does the "sadly" mean that you see positive effects and you are sad that it is going to stop ? So vx-809 is not completely ruled out ? I have read blogs, where it is speculated that it is an issue of lipoabsorption where VX-770 and VX-809 compete... (both of them are lipophilic). This issue may...

Dear Incomudrox, I am the father of a two years baby girl with CF (DDF508). Together with other CF patients in Europe, we are investigating alternative medicines to cure cystic fibrosis. We got some interesting results. We are following your discussions and we admire your perseverance and...

Hi 2roses, we tried both curcumin and quercetin. We noticed positive effects in both cases: improved fat absorbtion and digestion to the level that we needed to lower the CREON dosage. Quercetin was definitively stronger. We stopped curcumin because our doctor said that it may impact the liver...

Hi 2roses, we tried both curcumin and quercetin. We noticed positive effects in both cases: improved fat absorbtion and digestion to the level that we needed to lower the CREON dosage. Quercetin was definitively stronger. We stopped curcumin because our doctor said that it may impact the liver...

Hi,<div><br></div><div>I know that some of you are on Azithromycin.</div><div><br></div><div>There was a recent study on inhaled Azithromycin, which was reported in the 2011 cystic fibrosis conference in Hamburg, germany.</div><div><br></div><div>I wonder if anyone out there has tried that or...

Hi,<br>I know that some of you are onAzithromycin.<br>There was a recent study on inhaledAzithromycin, which was reported in the 2011 cystic fibrosis conference in Hamburg, germany.<br>I wonder if anyone out there has tried that or talked to the doctor about it.<br>the researched used eFlow...

Hi,<br>I know that some of you are onAzithromycin.<br>There was a recent study on inhaledAzithromycin, which was reported in the 2011 cystic fibrosis conference in Hamburg, germany.<br>I wonder if anyone out there has tried that or talked to the doctor about it.<br>the researched used eFlow...

hi tisha,<div>many thanks. I will check the progress.</div><div><br></div><div>by the way, great stuff your blog and history !</div><div><br></div><div>mark</div>

hi tisha,many thanks. I will check the progress.<br>by the way, great stuff your blog and history !<br>mark

hi tisha,many thanks. I will check the progress.<br>by the way, great stuff your blog and history !<br>mark

Hi, I have the same question ? Can this be used on young children below 2 years of age ? do you also nebulize NAC ?

Hi, I have the same question ? Can this be used on young children below 2 years of age ? do you also nebulize NAC ?

Hi, <br />I have the same question ? Can this be used on young children below 2 years of age ? <br /> <br />do you also nebulize NAC ?

many thanks I will try to join

many thanks I will try to join

many thanks <br />I will try to join

dear all, many thanks for all the posts. Ok, we stop GSE for nebulizer. We actually stopped one week ago. It was a good thing to ask to you. I was reluctant because GSE really helped us. The first year of her life, the pattern was cold->bronchitis->antibiotics every month. After we started GSE...

dear all, many thanks for all the posts. Ok, we stop GSE for nebulizer. We actually stopped one week ago. It was a good thing to ask to you. I was reluctant because GSE really helped us. The first year of her life, the pattern was cold->bronchitis->antibiotics every month. After we started GSE...

dear all, <br /> <br />many thanks for all the posts. <br />Ok, we stop GSE for nebulizer. We actually stopped one week ago. <br />It was a good thing to ask to you. <br />I was reluctant because GSE really helped us. The first year of her life, the pattern was cold->bronchitis->antibiotics...