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  1. D

    CF clinic?

    Just to let you know, CF is a body-wide problem.  Everywhere "normal" people secrete mucus, people with CF make more of it, and its thicker.  CF can affect multiple body systems, and if you have a CF center specialist's input, you have instant access to answers to any problems that arise.  They...
  2. D

    CF clinic?

    Just to let you know, CF is a body-wide problem. Everywhere "normal" people secrete mucus, people with CF make more of it, and its thicker. CF can affect multiple body systems, and if you have a CF center specialist's input, you have instant access to answers to any problems that arise. They...
  3. D

    CF clinic?

    Just to let you know, CF is a body-wide problem. Everywhere "normal" people secrete mucus, people with CF make more of it, and its thicker. CF can affect multiple body systems, and if you have a CF center specialist's input, you have instant access to answers to any problems that arise. They...
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    embolizations

    My embolizations did not change my FEV1 and the only time I had pain was with the last one where they embolized the entire vessel.<br>
  5. D

    embolizations

    My embolizations did not change my FEV1 and the only time I had pain was with the last one where they embolized the entire vessel.<br>
  6. D

    embolizations

    My embolizations did not change my FEV1 and the only time I had pain was with the last one where they embolized the entire vessel.<br>
  7. D

    New Hospital = dissapointment

    <br>I have two words for you---DITCH them.  I went to Hopkins when I first moved to MD, then realized that it was bad, you are not alone on that idea.  When you are seen in clinic, it is by CF specialists.  When you are admitted, you are on the "medical" floor (unless that has changed since...
  8. D

    New Hospital = dissapointment

    <br>I have two words for you---DITCH them. I went to Hopkins when I first moved to MD, then realized that it was bad, you are not alone on that idea. When you are seen in clinic, it is by CF specialists. When you are admitted, you are on the "medical" floor (unless that has changed since 1998)...
  9. D

    New Hospital = dissapointment

    <br>I have two words for you---DITCH them. I went to Hopkins when I first moved to MD, then realized that it was bad, you are not alone on that idea. When you are seen in clinic, it is by CF specialists. When you are admitted, you are on the "medical" floor (unless that has changed since 1998)...
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    CT Scans / Hemoptysis

    <br>Question?  Why is everyone getting a CT scan?  When I started to have hemoptysis, I was evaluated differently.  Just like doing a cardiac cath, they went in by way of  the femoral artery, but they shot dye into the bronchial arteries.  They looked for enlarged vessels to find the probable...
  11. D

    CT Scans / Hemoptysis

    <br>Question? Why is everyone getting a CT scan? When I started to have hemoptysis, I was evaluated differently. Just like doing a cardiac cath, they went in by way of the femoral artery,but they shot dye into the bronchial arteries. They looked for enlarged vessels to find the probable bleeder...
  12. D

    CT Scans / Hemoptysis

    <br>Question? Why is everyone getting a CT scan? When I started to have hemoptysis, I was evaluated differently. Just like doing a cardiac cath, they went in by way of the femoral artery,but they shot dye into the bronchial arteries. They looked for enlarged vessels to find the probable bleeder...
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    Those with DDF508 Mutation

    My husband and I had a very hard time trying to conceive. We went the gamut, but drew the line at IVF. I didn't think that I could do that with the kind of job that I worked (full-time paramedic). We wound up adopting two adorable girls. We feel that they have completed our family, and I know...
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