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Hi Andy, I don't get on this site as much as I used to, so I apologize for the late reply. To answer your question, I have not been able to increase my FEV1 for any sustainable amount of time. There have been times when it will elevate (after IVY antibiotics), but then it will usually go back...

Below is a snippet from the CF foundations page regarding indoor events attendance policy. "To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a...

I have not received the PPP. Please e-mail to radies@gmail.com. Also, does this apply to Zenpep? Thank you?

Please e-mail, thanks radies@gmail.com

I'm about to turn 36, I have DDF508 w/pseudo. I'm also a husband and father of 1 and 4 year old girls. We live in Houston, Texas. You could say I'm busy and don't have time for treatments. My regimen is designed to minimize the interruption of my daily life as much as possible while still...

Hey folks, my wife and I had an idea that seems to be getting a ton of positive responses. We decided to do a Toys for CF drive this year. The idea is very simple, try to collect as many toys as we can via our volunteer toy drop locations around town. Then take the toys to the CF Care center...

I'm looking for any information regarding people who have succesffuly improved your FEV1. I need to know what you did differently, and how much you improved it. My doctor doesn't believe its possible, and really will not offer any ideas to me. Everything I suggest trying, she tells my why its...

You must have FEV1 of 40...if its 39 you will not qualify. Good luck.

Anyone taking Kalydeco with DDF508?

Originally posted by: kittenface I've been with the company for 22 years and have a great insurance plan. I live in Canada. I thought everyone in Canada has insurnace becuase they have socialized medicine?

Unfortunately, in today’s world we find ourselves living double lives. At work we must be healthy. If your boss finds out your not healthy then you need to work damage control and find a way to appease their inquisitive minds without giving away everything since you might scare them into trying...

Kevin,I think you and I havea lot in common. I will turn 35 this Friday, I have two little girls. My FEV1 is 40%. I was just sitting here in my living room watching my youngest sleeping while thinking about how horrific it would be for her if I passed away within the next 5 or 10 years (or...

I have to say that I love to hear about everyone's working out plans. Lifting weights and bike riding is what I like to do. In 2008 I participated in the MS150 ride from Houston to Austin which is a two day 180 mile bike ride. I enjoyed it, and it gave me the motivation I needed to get out...