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I have only ever had one other migraine in my life - it was back in August, and it came seemingly out of nowhere, but I had the "warning signs" of a migraine aura, tingling/ numbness in my hand and face, before the actual headache started. I went to the ER and they gave me reglan and ibuprofen...

Just curious if anyone else experiences this and if it's a cause for any concern? I've been noticing lately that my fingernails tend to be blue/purple-ish (starting near the cuticle and extending outwards). I've always had very very mild clubbing. O2 is good, although I've been getting bouts of...

Hello all. I don't come on these forums too often, but lately I've been struggling a bit and could really use some advice. I'm 21 w/ CF and have always been considered pretty healthy. My FEV1 is rarely below 100%, and I think the lowest it's ever been was around 90%. My resting O2 is never below...

So lately I've had this particularly nasty cough, and I usually take Levaquin to treat the bacteria I have, but it hasn't been helping, so I've been trying new antibiotics to treat it. I've been taking Minocycline 5 days now and the good news is my cough has calmed down loads, but the bad news...

Hello, I hope everyone is doing well! So I just wanted to share that I found this website called RarePatientVoice (I think I may have heard about it from some one on here?) which allows people with diseases considered "rare" to take surveys and occasionally get rewards in the form of gift...

Does anyone else feel that the amount of sleep their body demands of them is just... way too much? I understand that getting plenty of sleep is especially important with CF, and I have been on antibiotics lately (the infection seems minor), but it just seems like way too much sleep for anyone to...

Zero Energy/Reliant on Caffeine It seems as though I can't get through an entire day without some form of caffeine, often multiple cups of coffee in a day. I tried cutting back and drinking decaf because it can't be healthy, but I only lasted a little while before complete exhaustion caught up...

I keep getting reads of very low temperatures on my thermometer. I mean, it's probably a very cheap one, and at first I just thought it was a fluke, but this is the second instance in which I got these readings while not feeling well, and it's consistent. Last time was about a month ago, and it...

I've been having some stomach issues that I thought were a just a result of lots of antibiotics (I was on clarithromycin, ehtambutol, and riffampin for about a year, with added levaquin near the end, and then tobra and zosyn through IV for two weeks), but I've been off of all the antibiotics for...

Hello everyone, I'm not on the forums very often, but I was just wondering if anyone has had experience with a PICC line and chest pain? This is only my third line, and it was put in yesterday morning - the other two were in my left arm, but there was too much scar tissue from the previous lines...

Hello, I was just wondering if anyone on here has ever had any experiences with petechiae? At least, I think that's what I've got going on right now, with a little help from google. I've seen it there before - little red and purple dots beneath the skin that don't itch, looks like something...

Hello! So, I have been having quite a bit of hair/skin/nails problems lately and was just wondering if any one else on here has experienced similar issues, or if it's even CF-related at all. I'm 19 and have cystic fibrosis, and have always had rather sensitive skin. I can't really use anything...

I posted this in "Teenagers and Young People" already but it was suggested I post somewhere else, so this is a repost, hope that's okay. I actually posted this yesterday but i'm still experiencing the same symptoms. I haven't been able to get in contact with my doctor, so i was just hoping I...

I'm not even quite sure if I'm posting this under the correct category, but I hope this is alright. I'm eighteen years old, I have CF, and I just got my first bronchoscopy this morning. It's eleven at night right now, I'm starting to feel feverish again (cold, aches and pains - I had a short...