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I never really thought of explaining the enzymes while mixing them. I have always done it in front of her bc we mix all her medicines on the table next to her highchair but I have never told her what I am doing! I will have to try that! I did have success with the Welchs fruit snacks so I went...

That video is great! When Aubrey was taking them like that I would hear her crack them open before she swallowed them ugh, I used to worry about them activating too soon! I will have to try the candy route, she loves fruit snacks. Or maybe the banana idea. I am hoping this is a quick phase she...

My daughter with CF is 1 1/2 years old. She started taking enzymes Day 2 and has never given us any problems until recently. We have always put them in a spoonful of applesauce. She is refusing the applesauce now, along with pears etc... after denying the fruit we tried just giving her the pills...

We had a bronch done on my daughter when she was about 6 months...she had a lot going on at the time as well. They didn't find any bacteria but they were able to get a lot of mucus out when they were doing the bronch. They also found that she has floppy airway which was causing her milk to get...

We are active duty so our kids are Tricare Prime. We did have my middle child on standard for a few months and the copays were really cheap but that is for my child without CF. And I never had to have anything besides well baby check ups. Are you near a Military Hospital? Portsmouth has a...

Thanks everyone! As our luck would have it our middle child had to visit the ER with a cold and ear infection! Both the little ones are on antibiotics now! Aubrey had to go back in today bc she developed a cough and it had gotten really bad. It would wake her up and she would have about a 3...

Were on Albuteral, pulzymes and CPT twice a day and it does help her breathing for a little bit but then it goes back to normal. Everyone is good at washing hands before holding the baby, although we don't have many people coming over these days bc were so tired!! And I have soooo many bottles...

Our daughter Aubrey is 6 weeks old today! When she was born they warned us about the possibility of no poop so when she pooped right away we were so excited. They also said it would be hard for her to gain weight. She ate like a champ and gained an ounce a day. We were feeling so positive about...

My daughter has DDF508 and I found out through an amnio while I was pregnant. Our CF center and this website have been awesome at learning everything and getting support. I can't really give you too much advice because my daughter is only 2 weeks old. But I am definitely here for you if you need...

Thanks everyone! Our first visit went well and we learned alot more! They did hear her cough and now she is on some acid reflux medicine. Her weight is awesome! Everytime they told us our baby would be on the small side we joked that they would be surprised bc we make some chubby babies!! Her...

Aubrey Anne was born one week ago! She is DDF508 diagnosed through an amnio. She pooped right away and everyone was so excited since they mentioned the possibility of not being able to poop right away. And she hasn't stopped pooping! Her lungs looked good and she is eating like a champ. She did...

I have never heard of the Bow Tie thing how cool! And as of yesterday it says CF was in first place! Thanks for the information!

We are in the same situation as you! I am 30 weeks pregnant with a baby girl that has CF. She has DDF508. And we have echogenic bowel on our ultrasound as well. (But our last child also had echogenic bowel but she is just a carrier). I am active duty military and we live in Virginia. We are...

Thanks everyone for your kind responses! I will be getting a High frequency ultrasound every month to monitor the baby. We also have an appt next week with our CF clinic here where they will walk us through everything. We have till November (Fingers crossed) to get knowledgeable and prepare for...

We are currently pregnant and my husband and I are both CF carriers so we opted to do the amnio. We got the results back in yesterday and she was confirmed to have cystic fibrosis. A double DF508 mutation. We are letting it sink in right now. I am 6 months pregnant and we have a few months but...