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Hmmmm.... I live in the UK and have an eFlow. I use it for Tobi and DNase. There was a little confusion at my unit as to what else it could be used for but I know of people that also use it for Colistin and Salbutamol. I don't think you can use hypertonic saline in it though. Unless it's...

Amber - don't worry about the fact that it may take a long time for your son's rare mutation to be cured. Only one gene needs to function to cure CF (at least that's what they're hoping!) so as your son has deltaF508 this gene can be corrected and then he will only be a CF carrier rather than a...

Just wondered if all post transplant pwcf have to take long term steroids - and what other meds do you have to take? Laura xxx

Hiya Jennifer I'm not sure why my bone hasn't collapsed - I guess my doctors don't know either... I haven't had any treatment at all because it's "too far gone" to do anything but replacement. I actually wasn't aware that the joints can collapse/break - I just assummed I would eventually be...

Hi Jennifer Sorry to hear of your bad news - I also have avascular necrosis, but in my knees (end of femur bones). I had pains for several years before I was properly examined and diagnosed. I had been on steroids for 6 years previously but no-one had thought to investigate! I was quite annoyed...

fev1 measures the amount of air breathed out in the first second, whilst fvc is the total breathed out. It's impossible for fev1 to be higher than fvc unless you're sucking the air back into your lungs from the machine. Maybe that's partly why your blows are low - I'd go over your technique with...