JennifersHope
New member
Hi,
Well I got the word today on my bones... Dr said that I have the osteonecrosis also known as avascular necrosis.... He said I also have arthrititis in my hips as well....
Basically avascular necrosis is when the blood supply to your bones (in my case hips) is cut off, the bone will die and fall apart which is very painful btw.. I am lucky enough to get this from the extremley high doses of steroids I am on related to my addison's and exacerbated by CF
I am having further tests to determine if I am a candidate for a surgey that can help the bone to live longer... it is called a decoring or something.. It is a major operation with a six week recovery time in a healthy person.. The whole purpose of it is to buy me more time before I need bilateral hip replacements which is also a major surgery and something that he said is for sure in my future...
My dr said he wants to stress to me that it isn't a matter of if this is going to happen to me but more of matter of when... He doesn' t know..can be weeks to years.... but I can wake up one day and have broken hips.. they will crumble right out from under me....I have the song ring around the rosie stuck in my head esp the part about WE ALL FALL DOWNNNNNNNN
. The next test will determine how far along I am in the process of breaking. Not to much they can do for the pain... he said they can give me injections under floroscopy into the hip... and that could help for a while.. but he wants to wait for the rest of the tests to be done.....He offered me narcotics which I won't take cause it makes me vomit....
He told me I should be thankful that my bones haven't cracked in half YET.. GOsh I am having a hard time feeling thankful... but I guess as long as I can finish school it will be okay... He did tell me that if I am a candidate for the surgery I need to have it right away... in order to get the best results... I told him I don't care if I stRap two by twos to my hips.. I am finishing school first.. since the recovery is so long...
Okay done rambeling... I know this isn't directly CF related... but if I didn't need all those high doses of steroids cause of my dumb breathing..
Anyway.. anyone know where I can get some good two by twos??????
Jennifer
Well I got the word today on my bones... Dr said that I have the osteonecrosis also known as avascular necrosis.... He said I also have arthrititis in my hips as well....
Basically avascular necrosis is when the blood supply to your bones (in my case hips) is cut off, the bone will die and fall apart which is very painful btw.. I am lucky enough to get this from the extremley high doses of steroids I am on related to my addison's and exacerbated by CF
I am having further tests to determine if I am a candidate for a surgey that can help the bone to live longer... it is called a decoring or something.. It is a major operation with a six week recovery time in a healthy person.. The whole purpose of it is to buy me more time before I need bilateral hip replacements which is also a major surgery and something that he said is for sure in my future...
My dr said he wants to stress to me that it isn't a matter of if this is going to happen to me but more of matter of when... He doesn' t know..can be weeks to years.... but I can wake up one day and have broken hips.. they will crumble right out from under me....I have the song ring around the rosie stuck in my head esp the part about WE ALL FALL DOWNNNNNNNN
. The next test will determine how far along I am in the process of breaking. Not to much they can do for the pain... he said they can give me injections under floroscopy into the hip... and that could help for a while.. but he wants to wait for the rest of the tests to be done.....He offered me narcotics which I won't take cause it makes me vomit....
He told me I should be thankful that my bones haven't cracked in half YET.. GOsh I am having a hard time feeling thankful... but I guess as long as I can finish school it will be okay... He did tell me that if I am a candidate for the surgery I need to have it right away... in order to get the best results... I told him I don't care if I stRap two by twos to my hips.. I am finishing school first.. since the recovery is so long...
Okay done rambeling... I know this isn't directly CF related... but if I didn't need all those high doses of steroids cause of my dumb breathing..
Anyway.. anyone know where I can get some good two by twos??????
Jennifer